Sharing a letter to a friend
This is a letter to a friend I've known since 1972(!), who had already signed up for a prostatectomy, but in the eleventh hour was having second thoughts, since he had secured something like five opinions. Some had recommended short term INTENSIVE radiation (whatever...
Update: Deja Vu and the cancer that got away
This is an update to my earlier post. I had 37 visits to radiation oncology and a month after finishing treatment the PSA had gone from .36 to .04, so they said I was clinically zero, so a success as of this writing. I tolerated the radiation well...they said.
Dur...
Views: 90 Replies: 2
Last Post: Apr 18, 2024 8:00am by Jon R.
Length of Remission
Dear Colleagues,
I have not been treated for PCa since June 2016. Last treatment for two years was on ADT using zoladex and radiotherapy. However, I have been taking herbal supplements like lemon, pumpkin seeds and a few others.
How long can I stay in remission bef...
podcast invite
Recently got an e-mail inviting me to be a guest on a podcast from a woman advocate on PC treatment. Anyone else experience this? Pretty vague info given, and I was very short in my reply in case it was some sort of scam. E-mail came from some media corporation in Ne...
Views: 53 Replies: 2
Last Post: Mar 6, 2024 10:30am by Jon R.
HIFU/TULSA
I was diagnosed with PC in Jan with a gleason of 6.
Doctor wants to watch and wait.
I asked about HIFU OR TUSLA procedures
But he wasn't too keen on them.
Said he would refer me to one if I choose to.
Question
Has anyone had either the HIFU OR TULSA
Procedures...
Views: 160 Replies: 5
Last Post: Feb 7, 2024 9:11am by 2BukChuk
Who has had exceptional recovery after removal?
I'm interested in the percentage of 'exceptional recoveries' after robotic removal of prostate. I rate mine as an exceptional recovery and wonder if I'm being accurate - or optimistic? My story is here: https://www.yananow.org/display_story.php?id=1380
Deja Vu and the cancer that got away
I'm near six years out from a prostatectomy in March 2018, and my PSA is rising. I never stopped getting PSA tests unlike others I know (bad idea I think). Post surgery I was at .04, most recent is .36...up from .33 same month. I'm very disappointed that I'm one of t...
Views: 227 Replies: 7
Last Post: Dec 16, 2023 2:51pm by Jon R.
Orgovyx
Does anyone have any opinions (experience) on Orgovyx instead of injections? Thank you.
PSMA false positive
Hi guys, anyone else get a PSMA positive for prostrate organ but
negative on biopsy? (Husband had low but rising PSA so doc order the
new PSMA PET scan.) Thanks.
Incontinence Recovery
I am recovering from a laparoscopic prostatectomy done on Mar. 14 (about 2 weeks ago). The catheter was removed Mar. 25. I have absolutely no flow control. It's as though the catheter was still in place, since urine dribbles continuously if I am standing or walkin...
HDR PSA readings going up..
Hi Everyone,
It has been a long time since I posted in 2018. My husband did get the
HDR back then and he was very pleased with the process and outcome. Of course,
I lost 10 years worry about him.. Things were looking good as over time
his PSA went down down down...
Views: 188 Replies: 5
Last Post: Nov 5, 2023 8:29am by Sid
Post catheter removal
I had HIFU surgery on the 14th of April in London and flew home to Scotland three days later. My catheter was removed at my local GP's one week after surgery. It is now four (nearly five) days later and my waterworks are far from normal. I'll try to give as brief a s...
Thoughts on Possible Next Lupron Shot
I am interested in any input any survivor might have, and I completely understand the varying views on the subject of when to restart Lupron during intermittent treatment. History is; treated with surgery and radiation in 2005, reached a .2 nadir in about 18-24 month...
Views: 109 Replies: 2
Last Post: Oct 23, 2023 2:53pm by Allen Z
Rising PSA
Dear colleagues,
I became ill in 2013 and my PSA was 65. I was started on zoladex in June 2014 for for two years and my PSA dropped to below 1. But mid of 2019,it rose to 0.6, then 1.97 in June 2020 this year up to 2.31 this September 2020.
Doctors want me to do a...
Views: 491 Replies: 12
Last Post: Sep 3, 2023 6:29am by FCB
Research Project-University of Edinburgh
We are sociologists based at the University of Edinburgh, working on a project exploring how understandings of cancer are being transformed by new technologies and advances in scientific knowledge. We think that online forums provide unique insight into these experie...
bone cancer
in 2010 discovered prostate cancer gleason score 9. Had brachytherapy and pronounced in remission, psa was always barely readable. Bone cancer has just been found by accident in the pelvis, Dr has put me on Zoladex and will be forever, psa score is still ridiculously...
ADT and Stomachaches
I have been on ADT (Eligard) for about 18 months Since I started, I have been having daily bouts of stomachaches with some minor nausea. My oncologists tell me ADT can't cause stomachaches. I have been to two GI clinics, and they cannot find the cause of these stomac...
Paging Don Oberlin?
Good grief Don,
I come on here to see how you are going and end up answering six questions. What is going on mate?
john bonneville
An Early Journal Entry For Your Review and Comment
Treatment Center Selection
I first heard of proton therapy by way of Bob Marckini's book, "You Can Beat Prostate Cancer." His book more than anything else convinced me proton therapy represented my best treatment option. Subsequent research has not dissuaded me fr...
note for newcomers
This may serve as a heads up for anyone new entering here and looking for answers. This is a good place to look into for a LOT of info on prostate cancer and its treatments. There are hundreds of stories to study and apply to your own circumstances and many candid op...
Active Surveillance
Hi, I'm new to this. I live in the United States (Wisconsin). A friend shared this website with me. If anyone has an honest opinion about my Prostate Cancer, I definitely want to hear it and appreciate it. There is so much information out there on the internet, and I...
Post catheter removal - urinating
I had a radical prostatectomy Jan 24th and they removed catheter on 4 days ago. A lot of times I have strong sensation to pee but at the urinal it barely comes out. Other times I have a good flow. It burns when I pee. I’m assuming this is normal but I’m a...
Wouldn't it Be Nice: A Whimsical Diversion
An extremely frustrating aspect of a PCa diagnosis has been the lack of consensus among the recognized experts. Most all practitioners including urologists, radiologists (a diverse group unto themselves), medical oncologists and a variety of surgeons appear to regard...
My first post..
Hi everyone,
I just found your website. Wish I had found it earlier..
I am in the USA in Maryland/Pennsylvania area.
I will be moving to Arizona in the next couple of months.
Question..
I need to find a good doctor in the area that .. gulp .. knows what they...
Invitation to the PrE-Health Study
Do you have prostate cancer? You may be eligible for a study which aims to learn more about patient information sources, internet-use and digital health literacy. We are looking for participants, even if you do not use the internet or technology in your day to day li...
New Topic
An early entry to my journal for your review and comment:
While awaiting treatment for prostate cancer, time is your enemy; a quality of life, if not, life threatening enemy to be sure. The following factors come into play:
---Relationship of PSA to treatment out...
Testosterone
I had a Lupron shot back in April and one scheduled for July which was cancelled; PSA was
Views: 189 Replies: 2
Last Post: Oct 5, 2022 1:18pm by allen z
FYI
I'm in the process of writing a book. Half or more will consist of my interactions with my fellow PCa Warriors on YANA. Hopefully it will be published within the next six months or so.
Most everyone on this site uses their initials or a pseudonym in their YANA excha...
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