This forum is for the discussion of anything to do with Prostate Cancer. There are only four rules:
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We are sociologists based at the University of Edinburgh, working on a project exploring how understandings of cancer are being transformed by new technologies and advances in scientific knowledge. We think that online forums provide unique insight into these experiences, as they help others to understand the decisions that those with cancer must make, and how the disease impacts on their lives in so many ways.
The forum moderator has agreed to us using this forum in our research. We would like to use existing posts 'Anyone on AS with a Gleason 7?','New Genetic Tests, 4K Score, PSA3, Oncotype DX, Prolaris', and 'Prolaris' written from 2014- July 23 2017.
We would not use posts composed after the date of this email in our research. We would not use authors’ real names (should this be given), nor their online username. We would use a false name (pseudonym). We would not use any quotes that would identify individual authors, including names, the names of family/friends, the place/country where they live, doctors/hospitals, or any other identifying information.
We hope that our research will improve our understanding of experiences of cancer, the opportunities available for individuals to share their experiences online, and why they might do so. Should any research arising from the discussions featured on the forum be published, we will provide you a link to the relevant publications.
We have received ethical approval from the Usher Institute, at The University of Edinburgh to conduct this work. Here is some more information about our project: http://www.cancerandsociety.ac.uk/
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I applaud this group for at least trying to gain an understanding of what cancer victims experience. We all cringe when we hear of someone contracting this disease but we can't really grasp the true impact until we ourselves are the victim. I don't know the motivation for this study or if it will be of any benefit to anyone, but at least it is a try in understanding what this disease does to the lives of victims. I am not a very good vocal communicator but I do have a small talent for getting feelings down on paper or in type. I have written many essays on this subject (to myself mostly) just to try to get my feelings expressed - and there are many. It doesn't change anything but feelings seem to need expression in order to heal and adjust, even if it is only to one's self. I hope this group's motivations are honorable and legitimate and not just for their own gain. At least they should gain the knowledge that this site and forum is a valuable resource and comfort for so many victims of this sadistic disease. Jon.