Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

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This forum is for the discussion of anything to do with Prostate Cancer.
There are only four rules:

  • No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
  • No harvesting e-mail addresses for Spam;
  • No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
  • Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making

Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

Since this is an International Forum, please specify your location in your post.

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Research Project-University of Edinburgh

We are sociologists based at the University of Edinburgh, working on a project exploring how understandings of cancer are being transformed by new technologies and advances in scientific knowledge. We think that online forums provide unique insight into these experiences, as they help others to understand the decisions that those with cancer must make, and how the disease impacts on their lives in so many ways.

The forum moderator has agreed to us using this forum in our research. We would like to use existing posts 'Anyone on AS with a Gleason 7?','New Genetic Tests, 4K Score, PSA3, Oncotype DX, Prolaris', and 'Prolaris' written from 2014- July 23 2017.

We would not use posts composed after the date of this email in our research. We would not use authors’ real names (should this be given), nor their online username. We would use a false name (pseudonym). We would not use any quotes that would identify individual authors, including names, the names of family/friends, the place/country where they live, doctors/hospitals, or any other identifying information.

We hope that our research will improve our understanding of experiences of cancer, the opportunities available for individuals to share their experiences online, and why they might do so. Should any research arising from the discussions featured on the forum be published, we will provide you a link to the relevant publications.

We have received ethical approval from the Usher Institute, at The University of Edinburgh to conduct this work. Here is some more information about our project: http://www.cancerandsociety.ac.uk/

If you would not like your posts to be included, you can opt out. To do this please email s1670603@sms.ed.ac.uk . You can also email this address for further information about the research.

Thank you.

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