Prostate Cancer Survivors

 

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This forum is for the discussion of anything to do with Prostate Cancer.
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Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

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General Forum
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Last Post
Two ADT (Androgen Deprivation Therapy) Related Studies
Mark and I recently received an e-mail regarding the two studies detailed below. Although we are reluctant to post requests for volunteers for studies, we felt, after corresponding with the author that these might have value. In terms of the relevant protocols I...
Views: 835   Replies: 2
Last Post: Feb 26, 2013 6:53pm
by Terry Herbert
a
akai
Genomic Health - Oncotype DX® Genomic Prostate Score (GPS
Has anybody looked into this new test that should be available, hopefully, soon? I am on AS and anything that will help predict what type of PCa I have is of particular interest to me. I have been disappointed by many announcements in the past regarding new tests,...
Views: 302   Replies: 3
Last Post: Feb 23, 2013 3:56pm
by Terry Herbert
New Zealand health system
I was attracted to the survivor story on this site of a gentleman from New Zealand because his initial age of diagnosis was the same as mine (77) and because his Gleason score was the same (9). He had a very low PSA while mine was very high. He had to use the gove...
Views: 196   Replies: 0
Last Post: Feb 23, 2013 3:12am
by Jack Assainte
j
john q
psa and testerone
i had lupron for about 8 months to shrink my prostate it lowered my psa my urologist said ir was not lowering my testerone and put me on firmagon i had that for 2 months it lowered my testerone below 20 all this was done for me to have radiation however i ch...
Views: 336   Replies: 3
Last Post: Feb 22, 2013 12:37pm
by john q
b
Bob
Prostate Cancer Deaths
I am a little concerned about recent news stories that would lessen the seriousness of prostate cancer and the need for prostate screening. I had a grandfather, and two uncles that died from prostate cancer in their 60's because they assumed they would not die from i...
Views: 935   Replies: 9
Last Post: Feb 22, 2013 10:57am
by Terry Herbert
psa
2005 i was dx with prostate cancer psa 6.8 gleason score upon biopsy 3+4=7 stage 2 t1c no mo elected radiation with seed implants and hormone all was good till july 2012 psa jumped to 68...bone scan negative..ct of tissue neg repeat psa was 200...biopsy done 12/...
Views: 344   Replies: 2
Last Post: Feb 22, 2013 8:02am
by Jack Assainte
Prostate infections and rising PSA
I have been on active surveillance for almost three years due to a Gleason six diagnosis. My problem is that, after my last round of biopsies almost two years ago which put me in the hospital with blood sepsis, I keep getting prostate infections. Each infection bri...
Views: 328   Replies: 3
Last Post: Feb 21, 2013 2:50pm
by thomas wolf
Orlando Symposium
Terry, I saw the question (a valid one) which you asked on the www. prostatecancerinfolink.net site regarding the Goodman study on Dutasteride use during 'off therapy' . Does this study help us make a decision one way or another? Could you tell us what you ge...
Views: 347   Replies: 1
Last Post: Feb 19, 2013 11:55am
by Terry Herbert
PSA Confusion?
There is a good deal of confusion (and indeed misinformation) about PSA and it's usefulness in measuring disease progression. Dr Snuffy Myers says he hopes this video PSA CONFUSION will clarify matters. Not too sure that it will do that but I am a good deal happ...
Views: 316   Replies: 1
Last Post: Feb 16, 2013 9:40am
by Jack Assainte
first steps
I am 67 years old and have very high risk for PC. Both older brothers have the disease. To now, PSA not alarming. It has been suggested that I have a biopsy performed because of enlarged prostate. Flow not too good. I am not impressed with the urologist I met with (o...
Views: 277   Replies: 3
Last Post: Feb 16, 2013 3:00am
by Bob Mattlin
t
Tom F
What step to take next?
Hello, It's been a while & I need to update my experience story as well, so here is my current dilemma, that I would appreciate some input on; November 2011 went to urologist for a urination urgency problem everything came out fine except my PSA was 2.7 up from .43...
Views: 370   Replies: 2
Last Post: Feb 14, 2013 4:37pm
by Terry Herbert
New ebook out now, by Dr. Stephen Strum (oncologist-extraordinare)
Myself consider him the most experienced oncologist in PCa and he has a pathology background too. Now a much need book on strategies for PCa availalbe as an ebook (Kindle) at amazon.com now. I usually don't promote to much, except when it is worthy for others. Chec...
Views: 397   Replies: 3
Last Post: Feb 11, 2013 12:31pm
by Terry Herbert
SURVIVOR WIVES ROUNDTABLE DISCUSSION
The wives of survivors face prostate cancer beginning the moment that their husbands are diagnosed. They experience the emotional stress with their husbands and are intimately involved in treatment decisions and everything beyond. There is some information which may...
Views: 293   Replies: 0
Last Post: Feb 9, 2013 1:04pm
by Terry Herbert
r
Roger
Is Cancer a Death Sentence?
I found this poll taken in six "wealthy countries" very interesting. Overall 48% did not believe cancer always leads to death...here in the US (land of the free and home of the eternal optimists) 65% said they do not believe so. Also interesting is the vast gulf...
Views: 303   Replies: 0
Last Post: Feb 3, 2013 8:09am
by Roger
Does Medicare cover Proton Beam Radiation Therapy?
I have also posted this information on the Us Too prostate cancer web site> I have heard both Medicare does NOT cover Proton Beam Radiation Therapy (PBRT) and Medicare does cover PBRT. The Centers for Medicare & Medicine Services (CMS) website has this to say...
Views: 399   Replies: 6
Last Post: Feb 1, 2013 1:58pm
by don oberlin
Enlarged prostate in man's best friend
In a recent episode of a TV serial originating from England (All Creatures Great and Small) , which involves veterinary medicine, we learn that a little pup is walking strangely. Upon examination, it turns out the pup has an enlarged prostate. The animal is treate...
Views: 226   Replies: 0
Last Post: Feb 1, 2013 5:46am
by Jack Assainte
PSA Level of 518 and MRI Results Showing 90% Probability of Prostate Cancer
Hi All, My name is Roni Setiawan from Indonesia. My father (73 years old) had prostate problems for the last 6 months and only last month the urologist advised him to take the PSA test. The first test is showing PSA level of 518 and the second test is showing PSA...
Views: 946   Replies: 9
Last Post: Jan 31, 2013 4:12am
by Jack Assainte
Any opinions please
Recently diagnosed - First post to this forum. I am 66 – 67 in May this year. I was feeling fine – no symptoms – but mentioned to my new Doctor that I had never had my prostate checked. He did a blood test. PSA – 7.9 Sent me to see Urolog...
Views: 616   Replies: 6
Last Post: Jan 20, 2013 10:15am
by Mike Smith
p
Peet
Treatment Choice 2 Months after Dx, Dr & Diet advice
Urinary symptoms first started around 2010, slower stream, nocturnia, occasional urgency. but was minor, just assumed part of the aging process. 2011, first PSA 5 with free PSA of 26%. Re-test after Cipro, 4.3. Waited a little over one year before another PSA whic...
Views: 429   Replies: 2
Last Post: Jan 17, 2013 11:04am
by John Thompson
p
Peet
Dattoli Clinic Info?
In my ongoing research, help from this forum and other resources, I've decided surgery is not my best option and have decided for radiation/seeds with short term hormone treatment with the Dattoli clinic in Sarasota Florida. I happen to reside app 70 miles north....
Views: 425   Replies: 6
Last Post: Jan 3, 2013 5:06am
by John Thompson
Recent diagnostic of PaC
Hi, I am portuguese, I am 58 yold, and I've been diagnosted with PaC after a biopsis. The PSA was 7,6 (increase in one year from 3.3) and free PSA 9%. The biopsis showed one cilindre (from a total of 6) with 40% . The Gleason score was 6 and my doctor staged as T2a....
Views: 385   Replies: 4
Last Post: Dec 31, 2012 10:43pm
by Carlos Alberto
j
Jose
Prostate regeneration
1.Check this out. Doctors working on regeneration of the prostate. They can now do it in animals. See the link below to see what this means for prostate cancer and RP. http://www.stem-cells-news.com/1/2011/09/usa-prostate-repaired-with-stem-cells/ 2. Very soon...
Views: 386   Replies: 0
Last Post: Dec 30, 2012 11:01am
by Jose
g
Geoff
Obturator neuropathy
Hi guys I had a RALP last week and am recovering well, but have adductor problems on right leg. Has any body out ther had similar, probably obturator damage, and how was it resolved? Thanks Geoff
Views: 255   Replies: 0
Last Post: Dec 29, 2012 6:49pm
by Geoff
No Rules
I saw my oncologist, the good Dr Lim, yesterday. My PSA has been rising at a rate that most people would regard as fairly frightening. It was 9 in July and 18 this month – a doubling rate of four months not being ideal. So it is pretty clear that the Zolade...
Views: 468   Replies: 10
Last Post: Dec 24, 2012 2:14pm
by Jack Assainte
b
Bruce
Lupron and anemia
After a routine physical my blood work showed my white blood cell count dropped 25%. I was always borderline low so now I was very low. Saw a specialist and she is running more test and watching my levels to see if I may need a bone marrow biopsy. I asked if my co...
Views: 404   Replies: 0
Last Post: Dec 22, 2012 7:56am
by Bruce
Setting the Record Straight
The first two sentences of my latest journal entry appear below: "Following my diagnosis of recurrent cancer folks have asked me if I had it to do over would I choose proton therapy." My answer is an unqualified, unmitigated YES." For those of you interested in the...
Views: 406   Replies: 2
Last Post: Dec 19, 2012 1:17pm
by Donald Oberlin
b
Bryan
generic drugs
MY STORY: I’ve never documented my story on the website, but I was diagnosed with prostate cancer after a very low PSA but very high biopsy Gleason scores of 9’s. I was 57 at the time and never had the first symptom. No night time problems. No swollen...
Views: 256   Replies: 0
Last Post: Dec 19, 2012 11:36am
by Bryan
Finasteride
Anyone have feedback on Finasteride for use for slow PSA rise after RPP/Radiation? Interested if any of the extreme side effects mentioned on a myriad of sites are more than rare or not. Doc thinks it has merit during AS to reduce PSA (I understand the comments abo...
Views: 339   Replies: 4
Last Post: Dec 18, 2012 8:23am
by Bruce
YANA November/December 2012 E-Letter
I'vejust mailed out this month's E-Letter. Well, a combined November/December E-Letter as my time was somewhat consumed in November finishing of the new CHOOSING A TREATMENT and RESOURCES pages. For those of you who haven't subscribed to the E-Letter, you can...
Views: 318   Replies: 2
Last Post: Dec 14, 2012 1:42pm
by Donald Oberlin
How strange can HT therapies and results get? Just as strange as the disease-No Rules applies
Here are some examples I either have witnessed or even done in my own case: ADT3 for 2 yrs. failing with 8 mini rises in 8 months (my early protocols with radiation IMRT)...DES thereafter with 1-mg (Italy sourced)...lowered stabilzed psa's for 8+ years and little...
Views: 532   Replies: 11
Last Post: Dec 13, 2012 12:48pm
by Donald Oberlin
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