High Risk
Aloha Terry,
Ok, so how do you determine which men are high risk?
My own experience with mass screening (by American Cancer Society) in early 2000's did find a higher than normal PSA. But there was no follow up by my HMO until I presented with problems that were th...
Today's New Post and Updates
Sunday, 16 August 2009
NEW POSTS:
JOHN S - diagnosed in February and has decided on Proton Beam at Jacksonville
JIM D - diagnosed in June and chose RALP (Robotic Assisted Laparoscopic Prostatectomy)
UPDATES FROM MEMBERS
TRUEMAN SEAMANS...
ED
Well, my situation, is that shortly after my DiVinci surgery, say 3 weeks, I was getting firm, but not fully erect. With stimulation, I found that the experience was quite enjoyable and was even able to achieve penetration early on!
But what happened next was rath...
Today's New Posts and Updates
Thursday, 13 August 2009
I sent out some reminders - and got some response, several from 'old timers' who have been fighting the good fight for many years.
NEW POSTS:
CHARLES COHEN - two years after his surgery he is satisfied with the outcome, usin...
Effects of Radium Treatment
About to take on Radium treatment for confined prostrate cancer early September. 25 treatments to pelvic area, 15 treatments to lymph nodes and prostrate and final 5 treatments to prostrate itself.
Been talking to various specialists and doctors and also did researc...
Views: 434 Replies: 5
Last Post: Aug 12, 2009 4:56am by Sandy
Today's New Posts and Updates
Tuesday, 11 August 2009
NEW POSTS:
MIKE L - although not all young men have aggressive forms of the disease, Mike has, with a PSA of 1,500, GS 9, T4 diagnosis
WILLIAM H - opted for Proton Beam at Loma Linda after diagnosis in June
SANDY DUFF...
Passing Seeds
I have endured a couple of weeks of pretty intense urinary symptoms and am taking my second round of antibiotics - Cipro followed by Levaquin. The problem started a couple months ago but only recently became unbearable. I had noticed some blood and small white bodi...
cancer spread
MY PROSTATE CANCER HAS SPREAD TO MY LYMPH NODES. DOES THAT MEAN THAT I NOW HAVE EITHER HODGKINS OR NON-HODGKINS LYMPHOMA OR ARE THEY ENTIRELY DIFFERENT DISEASES ?
Views: 604 Replies: 1
Last Post: Aug 10, 2009 3:39am by Steve Z
Has the definition of Gleason Grades changed/
A month or three back I was intrigued by a piece of information I came across, while looking for something else. Because I was in a hurry, it seems that I didn’t make a good note of the URL or keep a copy of the article which I found, so what follows is from me...
Recurrence after 8 years
Surgery (seeds and radiation) 2001. Initial PSA 7 Gleason 7. PSA stayed under 0.10 until two years ago then: 0.11, 0.16, 0.20, 0.23.Now a little hope here, my last two PSA test were both 0.30. My Doc advises watchful waiting and have the PSA tests every 6 months inst...
Watery bowel movements after surgery
My husband, age 61, had a robotic prostatectomy one week ago today. He has been taking Docusate stool softeners for a week. His bowel movements the first two days after surgery were with color and soft. Since, however, they are clear and watery. Is something wrong o...
Views: 284 Replies: 2
Last Post: Aug 9, 2009 2:14am by Sandra
The New Prostate Cancer InfoLink
This weeks entries on THE NEW PROSTATE CANCER INFOLINK include:
-- Prostate cancer news reports: Friday, June 31, 2009 (including items on Physician trust, continuity of care, and prostate cancer; Predictive tools in prostate cancer risk and care; Outcomes aft...
Today's New Posts and Updates
Saturday, 8 August 2009
NEW POSTS:
JIM WHELAN - newly diagnosed with Gleason Score 6 and undecided – wonders why HIFU was mentioned as an option but Proton Beam wasn’t?
UPDATES FROM MEMBERS
ALAN J – six months into h...
Chemo Side Effects
My last clinical trial has failed, PSA increased from 133 to 288 in two months. I will be starting chemo on Aug 11. This will be a trial of Docetaxel and Atrasentan versus Docetaxel and placebo. I was wondering if anyone out there could let me know of the side effect...
PC Spes, Zyflamend and other herbal treatments
I happened across a company called Nutrition 2000 and their PC Hope products. Apparently they have shown promising results in lowering PSA levels and in inhibiting spread. I've read that PC Hope is very similar in make up to PC Spes, too, with a Chinese herbal base....
Today's New Posts and Updates
Tuesday, 4 August 2009
Well, I made it – I am now up to date with all material submitted to date. Next thing will be to get around to the reminders for the slackers who haven’t submitted their annual updates!
NEW POSTS:
PATRICK CARMODY -...
Prostate Cancer
Newly diagnosed with prostate cancer searching for the proper treatment for ME. Can someone tell me what course they took and why?
Today's New Posts and Updates
Monday, 3 August 2009
NEW POSTS:
PAUL M - opted for RALP (Robotic Assisted Laparoscopic Prostatectomy)
UPDATES FROM MEMBERS
MARK WITZ – all going well after his RALP (Robotic Assisted Laparoscopic Prostatectomy)
LIONEL REPA...
Pain from Catheter ? starting after discharge from hospital
Hello All,
Last Friday I had the robotic procedure in Toronto. Things seemingly went very well. During the procedure I was given IV Toradol, and this continued till Sat. Other than that I had no pain at all at no need for any other pain meds. I went home Sat night....
Views: 311 Replies: 2
Last Post: Aug 3, 2009 3:31am by Paul M
Today's New Posts
I've just picked out the new entries for a quick post here - it's a short working day as we're off to our granddaughter's third birthday and then out to dinner with a visiting friend. But some of these men need help and advice - they seem have been badly served by th...
The New Prostate Cancer InfoLink
There have been a number of interesting entries since I have been away on THE NEW PROSTATE CANCER INFOLINK Those of you who haven’t bookmarked the Infolink site or signed up for the site so you get reminders direct might find these worth reading.
-- Can...
Still Confusion in the Diagnosis Process
Yesterday, I had my first visit with the oncologist. I was shown my MRI and the results of the Sloan-Kettering nomogram which the consultant had completed on my behalf.
It looks as though he has entered my staging as T2a (the previous visit with the urologist staged...
Views: 467 Replies: 7
Last Post: Aug 1, 2009 6:24am by Steve Z
ED Quandry
I am an oxymoron. 58 y/o "Chiropractor with a bad back" and now bad penis!
I had the Davinci RP surgery just over two months ago. PSA less than .1, just a little stress incontinence but nothing major.
My surgeon had me start on lavitra 2x/week to try to stimu...
Views: 497 Replies: 2
Last Post: Jul 31, 2009 7:02pm by Paul A
Can a bicycle seat influence the outcome of a Coil-MRI ?
Attached is a note I just sent to my Surgeon. I'm scheduled for RP LAP on Sept.17. Have not received a reply from this note to the Doctor yet.
************
Dear Dr. ***,
I have a question regarding the anomaly of a very low Gleeson score of 6 (3+3) and a conflict...
Life as it is given to us
Aloha,
I find in my journey through this strange land that I need some reassurances that I am doing the right things and making the best choices. About one year after PCa treatment, I started serious meditation, spending 20 to 60 minutes/day, 6 to 7 days/week. You...
Views: 470 Replies: 7
Last Post: Jul 31, 2009 1:55am by David
Today's New Post and Updates
Thursday, 30 July 2009
Well, I'm getting there - have completed entries up to Sunday. Phew!! Only a dozen or so to go.
NEW POSTS:
DAVID PRICE - newly diagnosed and undecided
TIM CASTLEMAN - has chosen proton beam therapy
UPDATES FROM MEMBER...
How Long Have I Got?
Not, as in 'when will the bucket be kicked?' (I'm just about over that particular demon) but rather how long might I leave it before undertaking treatment?
I've filled in my profile (but I think it's not been uploaded yet) so in brief:
PSA on diagnosis - 4.1
Gleas...
Views: 953 Replies: 21
Last Post: Jul 27, 2009 8:51pm by David
Cyberknife Radiotherapy
As this is a relatively new procedure in the UK has anyone had this treatment and if so when and what has been the outcome todate? Where is the treatment offered and is it available on the NHS.? If not what would be the cost for private treatment?
Today's New Posts and Updates
Sunday, 26 July 2009
Still battling to get updates done!
NEW POSTS:
RANDALL LEE - decided on ProstRscision at RCOG
LIONEL REPASKY - aiming for acceptance for proton beam at Florida
STEVE STRASEN -chose surgery and is happy with his choice...
Well, here I go!
Slow growing? Oh yes. Its taken about 2 years of WW to finally warrant some type of intervention. Results from the color doppler ultrasound biopsy on July 13, 2009: 5% core invasion to right mid gland (gleason 6) and a 2% gleason 6 to the left apex. DaVinci Surgery t...
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