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Hi Don,
Whist acknowledging your frustration with enzalutamide (affectionally know as enzo here in OZ), I guess you can take some comfort in the efficacy of
androgen receptor inhibition, albeit with profound effect in your experience. However as a rule of thumb, generalisations of side effects to androgen receptor inhibitors is fraught with variance. As we know only to well, one person's experience with a particular med, is no guarantee that similar findings will be replicated in other person's receiving the same drug and dosage. We have a member of our local prostate cancer support group, in his mid 90's, been on enzo for over 4 years, has advanced mets everywhere, and is still able to have intercourse with his wife. Most of the advanced guys are also on android receptor inhibitors and appear to be coping well with minimal symptoms to report, or perhaps they are just to shy, to do so. But I think your experience with enzo is valuable Don, not from your perspective of course, but rather to highlight variance of experience in using enzalutamide . I guess the real question should be, "what correlation is there twixt enzo symptoms and efficacy", in my experience probably none, but research might suggest otherwise.
Thanks for sharing your experience with us Don, and as always, best wishes.
Always good to hear from you John.
Without fail you bring interesting perspective to the issues we PCa Warriors present here on YANA. I suspect if my mate were still alive and/or I were a few years younger, I may be more motivated to experiment with various medical agents to reactivate my "manlihood". Be that as it may...best wishes to you and yours.
Don O.
