Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

This forum is for the discussion of anything to do with Prostate Cancer.
There are only four rules:

  • No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
  • No harvesting e-mail addresses for Spam;
  • No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
  • Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making

Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

Since this is an International Forum, please specify your location in your post.

General Forum
Start a New Topic 
Author
Comment
View Entire Thread
Re: elevated PSA after Prostectomy

Thank-you Janet,that information you shared was very helpful,still waiting for a Pet-scan test,but they seem to want me on Radiation,along wiith Hormone Therapy(Lupron).I am OK with getting the Radiation(8 weeks),but Honestly,the Hormone Therapys side effects has me VERY nervous,and I am VERY hesitant about allowing them to administer those injections.Has anyone else out their ever went against their advice and took Radiation ONLY?Thank-You

Re: elevated PSA after Prostectomy

Kevin, you can read my story under Allen Z if you'd like. What is not in there is "recent" information about the additional success data related to combining Hormone Therapy with radiation. I was not informed about the possibility at the time of my radiation back in 2005; but the medical community might not have studies on that at that time. I later went to a urologist and I got the expected answer. i.e., it is too late to add hormone in combination with the radiation since the radiation had already occurred. I had radiation after the surgery failed to get it all and my PSA was 1.15; within the "range" of trying for a cure or great reduction. I have read that some doctors only give the hormone for 3-4 months prior to radiation and maybe the same amount of time post-radiation. You are still at a low nadir and might consider some waiting/watching period of time--it's a decision you must make and move on I think. The data does suggest a better outcome adding the hormone with the radiation and could be curative or at least delay any progression for a longer time than radiation alone. I do not know what I would have done if offered back then, but have been reluctant to start hormone over the years-but will likely start when PSA rises to 4 (or maybe even higher). Sorry for the long response and wish you the best in your decision making process.

Allen Z

Re: elevated PSA after Prostectomy

Thank-you Allen Z for that valuable info,our experiences seem similar,my PSA moved up from .25 and is now .32 today,and it's only 5 months since my Prostectomy Surgery,still waiting on a Pet-Scan and hoping that shows it's contained to the Prostrate Bed and not spread any further.That Hormone Therapy scares the daylights outta me.Thanks for taking the time to reply.means A LOT

Re: elevated PSA after Prostectomy

Kevin,
Where do you sit at this point in time with the treatment?
Have you done Radiation and Hormonal? I am with you on the side effects of the Hormonal, not that the Radiation Thropy makes me happy either.
Is your PSA still .32 as of 10/14/19 or what was your progression and treatment?
I'm facing similar decisions after 7 years and the roller coaster is a bummer.
Wally

RETURN TO HOME PAGE LINKS