This forum is for the discussion of anything to do with Prostate Cancer. There are only four rules:
No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
No harvesting e-mail addresses for Spam;
No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making
Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.
Since this is an International Forum, please specify your location in your post.
Thanks Mark for info to that web site. Interesting. It shows it is a more common problem than it seems on the surface, hidden from common knowledge because no one wants to share such depressing news and why the medical community refuses to address it and even admit that it happens. Another instance where we are truly not alone. My guess is that the medical community doesn't bring this up because they are afraid we are dumb enough to let that keep us from treating the cancer. I would also guess they figure finding a solution is not profitable enough to go to the trouble of addressing the problem. A lot of things go unanswered when questioning beforehand. I asked why the dorsal venous complex was severed and sealed off and what that important sounding structure served and was simply told, "It is in the way and it supplies the skin." I got the feeling it was something I wasn't supposed to know. Maybe this explains some of the loss of size due to limited blood circulation(?). Maybe someday they will find the will and a way to alleviate this "minor" side effect that can have such a major effect on emotional recovery from this ordeal. At present, us survivors have been written off as casualties. Jon.
Self image, well, I'm glad I can still see mine in the mirror. I'm glad to be above ground, alive, breathing, able to hear the birds chirp, see sunsets, and be with my wife of 25-years.
The stress of having this cancer was overwhelming before prostatectomy...now that was unhappiness! Now I'm surprisingly (oddly?)content and happy, despite the, um, shortcomings I'm experiencing. Post surgery, I could barely extend to urinate, let along perform in the bedroom. I went dry after three months...first hurdle, then I started getting some length...between gravity and stretching, but not much. Never too endowed, perhaps I'm not missing much.
Still nothing like an erection after a year, with half-nerve sparing. I've refused pills and other post-treatment as I don't want to take more drugs or have procedures. Had to increase my high blood pressure pill dosage, and things are limper than ever down south. Appetite thankfully, has declined with lack of functionality, so maybe the two are in tandem.
The wife and I are busier than ever, just not in the bedroom, not that we don't try, and we do get a laugh out of the situation, amazingly enough. She calls me her support system. I give her a good tongue lashing (wink) in thanks.
I'm not sure how I'd process the whole post-experience if I were younger (under 60) or been more sexually active or had my sexual functionality more connected to my persona.
I'm 64 and 4 months post RALP. Not being well endowd, I was concerned about shortening. I was advised to use a vacumn pump and 5 mg cialis daily to keep the blood flowing to preserve what length and girth I had after sugery. I did lose the 1/2" I was told I would. These seem to be doing the job! So far Viagra and Cialis do nothing for a boner. The vacumn can be used with a constriction band and allows enough erection for sex. We were very active before and losing that was my biggest concern before and after surgery. Reluctantly, I asked about the Trimix injections a month ago, tried it and after the learning curve and some experimenting, have become comfortable and pleased with the results!! The OMG inject my willie factor was the biggest obstacle and it wasn't near the issue I had feared. It's like being 18 again and lasting longer than ever before! The wife was dually impressed! This was huge to an already damaged self image. Orgasm is possible and a little urine leak is easily compensated for. That is supposed to subside with time. All this to say, don't give up!! Read everything you can find on the subject and try to get-keep it UP!