Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

Return to Website

This forum is for the discussion of anything to do with Prostate Cancer.
There are only four rules:

  • No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
  • No harvesting e-mail addresses for Spam;
  • No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
  • Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making

Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

Since this is an International Forum, please specify your location in your post.

General Forum
Start a New Topic 
Author
Comment
View Entire Thread
Re: Should I Be Worried

Vinny; Hard for anyone to say what is going on there, IF anything. Certainly don't panic! Your PSA is likely going to bounce a little like it has, up and down, I would guess. Being radiation like you had, doesn't take the prostate out, there will always be some residual I would think. It pays to be alert and watchful for any major changes. Sounds like you are not completely satisfied with your current urologist. It might not hurt exploring a different practitioner for yourself, thus getting a second professional opinion working for you. If you do that, obtain all your prior records to take along. Historical facts will help any second opinion accuracy.
Pretty difficult not to be concerned about PSA readings after going through this. We are all in that boat I believe, but don't let it control you. We all would like to see that magical zero PSA but most of us don't get there. Jon.

Re: Should I Be Worried

Sincere thanks Jon, for your comments. I'm more concerned with the bouncing numbers, the urologist said previously, that three consecutive rises would mean to be more watchful, who wouldn't like numbers down below .75

In many respects, the fact that there is no one around me that you can talk to periodically, and who have similar issues, is unfortunate. The clinic won't divulge information of fellow patients, privacy being paramount, I understand that. Shame the clinic doesn't form a support group.

Re: Should I Be Worried

Vinny; Be aware that any of us with an e-mail listed along with our posts and stories are open to any one wanting to communicate. It may not resolve any issues or worries but it does help to just be able to express words to someone whom you know will care and understand.
I agree that there very few places with support groups for this cancer. None were available on my end either. Basically the clinics and doctors are just shops with "mechanics" and not qualified or eager to deal with such things. This is a subject not very conducive to normal conversation. No one really wants to know about the complications that treatment causes victims. They want to believe that prostate cancer is a minor cancer and not really worth notation. There is nothing that can be done about it and men are supposed to be able to overlook such feelings and not be affected by such personal feelings. "Man up" "get over it" etc.is the advice we get. Many times in our arena, it is not the disease that is such a problem but the results of treating it along with the uncertainty that comes after it. Jon.

Re: Should I Be Worried

Just re-reading above comments, whilst sitting and waiting to see my hematology specialist. Now that I know I have approx. 12% HCL (Hairy Cell Leukemia), and almono vitamin B-12 in my liver, thus causing or contributing to my platelets, red and white cells, being very low indeed. Does the lack of B-12 have any effect on ED?

I did my umpteenth blood test last Monday, will learn results in my current appointment.

Re: Should I Be Worried

Decent erections demand good blood flow and plenty of red blood cells. Vitamin B12 contributes to the development of red blood cells, so the fact that you have almost no (I think you meant) Vitamin B12 in your liver suggests a connection between the two! You may be offered a blood transfusion.

OC in England

Re: Should I Be Worried

Old Codger Thanks for your reply.

I'm guessing the lack of blood cells has affected the brain cells too! How I didn't put 2+2 together, I don't know. Pretty obvious now.

Anyway, all relevent RBC/WBC counts and platelets are down again over the previous month. The B-12 counts are up from 214 to 890, insufficient for the hematology specialist to be impressed, this appointment for a bone marrow test being set up in a couple of weeks. Not looking forward to that procedure.

Vinny

RETURN TO HOME PAGE LINKS