Prostate Cancer Survivors






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Hypofractionated proton beam therapy? Can you share experience with me?

Diagnosed 11/14/17 at age 75 after 9.98 psa, a Gleason of 7, a PIRAD score of 5, 60 % involvement in one node, 100% in another and possible extraprosthetic lesion. Have decided against surgery but am eligible for a Stage III clinical study at Mayo Rochester of moderate dose hypofractionated proton beam therapy with concurrent treatment of the prostate and the pelvic lymph nodes in 25 sessions with 67.5 Gy to the prostate and 45 Gy to the lymph nodes. A six month Lupron shot will be given on Dec. 14 and I will start treatment with carbon seed implants March 1, 2018. Could anyone share their experiences with a similar regimen and tell me if there are any concerns I should be addressing before I sign up for this trial? It would be a great Christmas gift to both myself and my wife if we could hear from others. Feel free to contact me directly or post responses to the board. We have already read a few postings on the subject here. Thank you in advance. This group is fantastic!

Re: Hypofractionated proton beam therapy? Can you share experience with me?

Assuming you have not already done so, why not contact Mayo Clinic to determine if someone there can provide names of PCa warriors who have undergone the same or similar treatment protocols?
Another possible resource would be Bob Marckini whose email address is
Best wishes (and Merry Christmas)
Don O.

Re: Hypofractionated proton beam therapy? Can you share experience with me?

You may want to inquire about Spaceoar - to protect your rectum. That is
a concern as it is right up against the prostrate gland. Good luck.