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Re: New here- looking for some guidance and support
OTR589
As others have said, new therapies are in the works; ask your doc and ANY other urologist you can contact about drug trials or similar studies (I'd be full time on this if I were in your shoes).
A place to start hunting for studies is the American Urology Association:
The rapid onset and progression, well, to be 100% honest, is not good. Doing the pelvic and bone scans will let you know if or how far it has spread.
I am admittedly a pessimist in these things and completely upset it's taking weeks to get into my saturation biopsy to stage my PCa. But now that you know the picture, you can start planning for what is ahead. I struggle with the two opposites: do I really want to know the truth and minimal end of the yardstick; or do I want move forward and ignore it until I can't. I always choose to get the brunt full face report of what is the worst I can expect. That allows me to plan something I can realistically accomplish. If it happens I get a longer yardstick, well, that then is a bonus.
I say this because I had one of those optimistic urologists that said don't worry. So I didn't aggressively follow up. His optimism was to my detriment.
Once the scans are complete; ask your doc for the statistics. He has them. If he doesn't tell you - then ask another uro, find a med school with a uro department, ask there; or there are some studies online - though are hard to find and hard to read.
Another resource is the National Institute of Health.
And, after you have all the scans done; get copies sent to other docs and get second opinions. The right answer will likely be somewhere in the middle of what you hear.
