This forum is for the discussion of anything to do with Prostate Cancer. There are only four rules:
No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
No harvesting e-mail addresses for Spam;
No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making
Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.
Since this is an International Forum, please specify your location in your post.
Latest in my quest for the cure, Had my colonoscopy last Friday and all went well. Got the starting lineup for my treatment on Thursday by FedEx. This Monday I am scheduled to have a chest x-ray and an MRI of the pelvic area. Oh and by the way I was left a voice mail from the financial adviser. She said "just a reminder on Monday you will be expected to pay ALL of your out of pocket costs that BC/BS won't cover this year $5,500".
For Tuesday, I am scheduled to have my 4 gold markers inserted into the prostate and the new SpaceOAR Gel inserted.
I had my 1st day workup, which was an orientation of the UF Health Proton facility then met with a financial counselor who took $5,500 which is the 2016 BC/BS catastrophic out of pocket max. Then had a chest X-Ray met with my nurse and went over todays procedure (insertion of SpaceOAR Gel) and then left to have a pelvic MRI with contrast performed. Today I will be getting this SpaceOAR gel inserted. This procedure is somewhat similar to having Brachytherapy seeds placed. From what I gather they seem to be selling tickets to Drs. and Nurses to watch my procedure. I will keep you posted.
Well I am officially in this trial for the SpaceOAR gel instead of having the balloon used for each shot of radiation. I will go into more detail in a later post but I have to say that two other men went before me and came out with out any problems. Me .... not that there were any problems but the local anesthesia that they tried on me did not work. I felt every needle inserted.
I wanted to wait a week before I posted my experience with this new procedure. I currently have NO side effects from this procedure.
Tuesday Feb. 23rd at 13:45 met with Nurse #1. She attached a Tegaderm patch with emla cream to numb the perineum area. I then took 4mg Valium and one 5/325 mg of Lortab. Then I had to sit and wait about an hour for this stuff to take effect. Next I was brought into the procedure room, I laid on my back and put my feet up in stirrups. With the family jewels hanging out three nurses started to prep me and move my testicles out of the way and covered them with a towel. Two doctors and the SpaceOAR representative came in and started to prepare for my procedure. The Doc first inserted a transrectal ultrasound probe into the rectum for guidance of all the needle placements. Next I had many shots of Lidocaine in all areas near perineum and shots into the prostate (supposedly to numb things). They then did the placement of the 3 gold fiducial markers into my prostate via needle insertion of which I felt each needle. Finally the last needle is inserted while they wiggle the ultrasound probe to get a better view for the placement of the SpacerOAR gel, but first they inject a saline solution then the gel.
Had the anesthetics worked it would have been tolerable. Unfortunately for me I felt the pain of every needle. I couldn't wait for this procedure to be over. It was much worse than the prostate biopsy but this was how I felt. Two other men who went before me did not have any pain during this procedure their numbing crap worked well for them. I am a lot larger than these men as I am 6'4" and 200 lbs.
Bottom line a week later I'm glad I had it done since I will not need the famous "balloon" placement for each of the 39 treatments.
I hope this helps anyone else thinking about having this procedure.