Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

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This forum is for the discussion of anything to do with Prostate Cancer.
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Same boat - different seats;

This is a good site for prostate cancer victims as there is not much help available generally in dealing with the aftermath of treatment. It certainly won't cure what is bothering us but at least gives us a feeling of knowing that we are experiencing nothing that anyone else hasn't or isn't experiencing. The best way I can explain it is that WE ARE ALL IN THE SAME BOAT BUT IN DIFFENT SEATS. We are all going in the same general direction. It is amazing how different each person's experience is and yet at the same time, how much we all have in common. That doesn't make much sense maybe but that is as good as I can explain it. I haven't found any help to make us "get over" what we have experienced and are still experiencing but reading other people's accounts can put our own situation in a better prospective and might just help us to move on. Some of the things that bother me a lot seem to be handled so well by some others and that gives me hope that I can "get over it" also. Maybe being humbled by others' strengths is a good tool in the process to move on. This cancer journey is a maze of corridors and no one, but no one, can know the correct paths to take or what the destination will turn out to be. There are no guides, no facts to go by, just best guesses at which bad option might be the best choice to keep us ahead of the grim reaper - if he is even there. J.R.

Re: Same boat - different seats;

Jon:
You make a lot of good points especially concerning the value of this site. We have much to share, and we can certainly learn from one another.
It seems to me the scientists continue to make progress in treating PCa, perhaps, a little too slowly for those of us drifting downstream.
Regards Don O.

Re: Same boat - different seats;

Why so melancholic Jon. It is another day and you are still here, so why not enjoy it as best you can?

Nowadays I prefer to reflect on the days that I have been privileged to enjoy. For the days remaining admittedly not quite so many in number, I don't intend to waste a single moment by pondering the existence or otherwise of the grim reaper.

Sure circumstance can colour our perception, but how we adapt to the challenges confronting us can be a very enlightening process. In time we are all going to make the transition from a living person to a deceased one. Nothing to fear or dread, purely a natural process, to be approached with dignity, hopefully. I guess the question each of us may choose to reflect on is, "did my existence mean anything"? Now I think we might receive a few responses to that question.

In respect to the tone of you post Jon, might I relate a bit of YANA history. Many moon's ago it was commonplace for men to post on here, newly diagnosed, and seemingly in desperate circumstance. So common in fact that Terry came up with, "you are not alone" YANA!. By contrast, today such posts still occur, but their frequency is far less commonplace. Why is that so? Well the last 20 years or so have seen great advances in both the treatment and outcomes for all stages of prostate cancer including advanced metastatic disease. Today PCa is becoming more of a chronic manageable disease not say unlike diabetes. But needless to say our journeys can take different pathways. I have seen men with low grade PCa door poorly, and somewhat surprisingly, men with high grade disease do well. I think it is just the luck of the draw but others may well argue that other factors are afoot.

So Jon and Don, do feel free to expose the flaws in my argument.

best wishes
john

Re: Same boat - different seats;

Jon and John:
A solid factually based analysis as usual John. You and Jon may have different perspectives---but both have merit.
Don O.

Re: Same boat - different seats;

G'day Don,
Do I detect a bit of fence sitting, LOL??

So how has your journey been going Don? I might hop over to your blog and have a quiz. Well I did and you seem a tad happier Don. Good to read. Dr Myers does use some interesting terminology. What prey tell is a "complete remission"? A remission I understand. But a complete remission?????

best wishes
john

P.S. Don't forget I come from that land down under. We see everything upside down!

P.P.S. Perhaps an complete remission might be considered as a incomplete progression! (:

Re: Same boat - different seats;

John:
I'm inclined to sit the fence from time to time especially when the occasion warrants doing so.
I am wholly satisfied with my treatment plan and outcome thus far. In truth I feel blessed. Thanks for asking. I appreciate your continued interest and support.
As a part of my next journal entry I intend to ask Dr. Myers for more information about his complete and durable remission protocol AND whether or not I might be a suitable candidate for this approach. This line of questioning got me crossways with Dr. Myers recently so I will reentering the arena with trepidation. Stay tuned.

P.S. Call it what you like complete and durable remission or incomplete progression, I'll settle for either.
P.S.S. Jon--Thank you for providing us the opportunity for this exchange.

Re: Same boat - different seats;

Don,

I believe Dr. Meyers says a complete and durable remission is when his patients are treated and show no signs of PC on any of the available imaging scans, Bone, MRI, Xray, PET/CT...etc AND have an undetectable PSA <.01 for 12 months.

Hope I got this right.

Fred

Re: Same boat - different seats;

All fine Don. In Australia from what I recall, the term remission tends not to be used with any qualification. I now understand the American medical jargon for the term complete remission. Given the roots of our medical practice over here have distinctly British origins, I have never come across a qualification on a state of remission. Perhaps such a term's utility is more comforting for a patient if so ascribed. Ok enough waffle. Thank you for the enlightenment Don.

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