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It will be interesting to see how well received and how effective HIFU treatment will be. Back six years ago when I was first diagnosed and I was exploring options, I learned of a HIFU clinical trial that was ongoing in Wisconsin. I reached out to them, and learned to my surprise that I would not have qualified. Even though I was Gleason 6, low PSA, only 1 of 26 cores at 5%, they said my prostate was slightly larger than their study would allow. So my take was that to prove the efficacy of their HIFU treatment, they were only accepting men who, by widely accepted standards, did not need any treatment at all!
I remain very glad that I found YANA, and that I chose Active Surveillance.
Hi Roger, I was gleason 7 psa 6.3 when I had HIFU. The machine did have a limit of 40cc prostate size, I was at 39.7 so I was able to have the procedure. I did mine in Mexico not part of a study where the requirements are often different.
Hi Ed,
I am sure many readers of this site would like to read an in-depth account of your HIFU experience. There are only a couple of men on this site who had HIFU as a primary treatment. Could you please tell us your story?
Hi John, My story and 17 other HIFU patient stories are in the survivor stories under unconventional/experimental HIFU section. I'm EG B. I have that very site to thank for alerting me to the HIFU option six years ago, for that I am very grateful. This site helped me at a time when I was struggling with my diagnoses by sharing real life experiences. "You are not alone now" is really true, Terry Herbert's legacy endures.
