Prostate Cancer Survivors

 

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Re: STAMPEDE TRIAL

Hi Edmund,

What was your PSA? Did you have any lymph node involvement or seminal vessel invasion?

You have a great story, I didn't think there was anyone else out there that hit hard early. It just seems so right to cut it, burn it, starve it and then poison the bastards before they take control (at least with high risk guys like us).

The MDT people at Marsden NHS have just said no way. I had a meeting with the private LOC and their 3 specialists also don't recommend it so Im not as confident as before.

The cost privately is about £18000, thats US 30k (sorry don't know where you are from) which is neither here nor there if it works.

Was the chemo bad? I am getting scare stories of septicimia, death etc which is putting me off a bit.

I really do not know what to do....

Re: STAMPEDE TRIAL

Hi JJ,

You can look up my story here under "Ed Julius" for the details. Basically PSA 10.9, no lymph node involvement, capsular penetration both sides, Gleason 9 (5 + 4) and seminal vessel invasion.

All of that put me in high risk territory.

The chemo was not too bad. The worst part, as I said in my story, was my reaction to the steroids that they gave me prior to the chemo-three days with no sleep. They adjusted the dose and it was much better.

There are side effects associated with any treatment. There are also potential BIG side effects in not taking any treatments! You sit as many risks as you run.

We all have to weigh the odds and make our choices. Once I learned the odds it was pretty easy decision for me. Fortunately I didn't have to spend $30,000 for treatments, but that amount divided by potential added years of survival could well be less than the cost of cable television.

In hindsight, I am pleased that I took the chance.

Please let me know if I can tell you anything else.

Ed

Re: STAMPEDE TRIAL

Dear JJ,
I wondered if you had gone ahead with the docetaxel. Following a Gleason 9 diagnosis, I had surgery in July 2013, started ADT in November 2013 followed by 33 cycles of pelvic radiotherapy in July and August 2014.

I also raised the stampede trial and the possibility of early stage docetaxel at the same NHS hospital as you in July 2015 and received the same response. Following the article in the Sunday Times today ( NHS denies Englishmen low cost cancer drug by Sarah-Kate Templeton) I thought I would raise the issue again at my next appointment later this month.

I would be grateful for any information that helps me decide whether to pursue the option of early chemotherapy.

Very best wishes

Lyn Noyes

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