Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

Return to Website

This forum is for the discussion of anything to do with Prostate Cancer.
There are only four rules:

  • No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
  • No harvesting e-mail addresses for Spam;
  • No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
  • Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making

Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

Since this is an International Forum, please specify your location in your post.

General Forum
Start a New Topic 
Author
Comment
recently diagnosed with prostate cancer

My husband just got his biopsy result with the followings:

2 spot with Gleason level 6 and 2 spots with Gleason level 7;
His PSA level is 5.1
We are trying now to find the treatment to avoid the surgery. Please response to our post, if you had similar situation and what kind of treatment did you use. Please share your experience with. We would appreciate all your responses.

Thanks,
Nonna

Re: recently diagnosed with prostate cancer

Nonna,

Sorry to hear about your husband, It would be helpful for you to tell us a little more about his pathology report. How much cancer in each positive core and was the gleason 7 a 3+4 or a 4+3. I would also recommend a multi parametric MRI. It can find tumors that an ultrasound might miss. The good news is he would be classified as "intermediate risk" and you will have a lot of treatment options.

Fred

Re: recently diagnosed with prostate cancer

Fred,

Thank you very much for your replay.
Please see below:
left mid
3+ 3 score of 6 involving less than 5% of needle core biopsy
right base
3 + 4 score of 7
involving less than 60% of needle core biopsy
right mid
3 + 4 score of 7
involving less than 60% of needle core biopsy

right base
from right 3 + 3 score of 6
involving less than 10% of needle core biopsy

Any Suggestions will greatly appreciated
Thanks,
Nonna

Re: recently diagnosed with prostate cancer

In his book "You Can Beat Prostate Cancer..." Bob Marckini discusses the advantages and disadvantages of the more common methods for treating prostate cancer. You may well find this discussion helpful in exploring your options. This book is readily accessible, an easy read and well worth its modest price. After you decide which treatments you wish to explore more thoroughly, you can sample the Survivor Stories on this (YANA) site.
Regards Don O.

Re: recently diagnosed with prostate cancer

Hi Nonna,

Could you please tell us how old your husband is as that can have some bearing on his options.

Best wishes,
Alan M in the USA

Re: recently diagnosed with prostate cancer

Research NCCN PROSTRATE CANCER on web it is a great document with lots of helpful and useful information, I am newly diagnosed also with two 6s and a 7 my psa is 9.1 there are a lot of great people on this site that will help. If you scroll down a little farther in the postings read mine Ducman38 I think you will find some of the replies would also apply to your husband. Good luck

Re: recently diagnosed with prostate cancer

Nonna!

I tried to reply to your post a few days ago, using Firefox, no luck. Then I was advised to try Chrome. That seems to work better, but this is my third attempt to reply with Chrome. The Discussion Forum seems to have some bugs. Will this get through?

I am a physician survivor, diagnosed with a Gleason 9 in 2009. In the course of 50+ hours of medical library research I learned a great deal about prostate cancer. A Gleason 9 was highly motivating.

I strongly recommend that you consult a radiation oncologist at a university center before making any decision. There are a few non-university centers which can provide equally good information and treatment, but how is a layman to know which ones? I think it is virtually impossible. I would not trust local opinion, friends, or advertising; your husbands life is on the line. So I recommend a university, where you can be confident that the docs know their stuff. (I discovered that, in the case of PCa, a surprisingly large number did not.) If there is a good facility more convenient to you, the university folks will know about it and be able to direct you.

For intermediate and high risk tumors, certain radiation protocols provide significantly higher cure rates than surgery. In low risk tumors, surgery does about as well. It sounds to me like your husband is borderline, between low and intermediate. I really think you should investigate radiation before making any decision.

There is more information in my Survivor Story.

Brooke Jennings, MD

Re: recently diagnosed with prostate cancer

This seems like kind of an increasingly pressing matter given the #'s involved so a decision as to brachy seeds ( if a candidate ), radiation or surgery using a top surgeon should be made and a cure pursued. Apparently brachy now has cure rates within a few % of surgery.

Re: recently diagnosed with prostate cancer

I agree with Brooke Jennings about going to a University Hospital. My local urologist was clueless and I had very good experience and results from UCLA as unfortunately Brooke did not.

Re: recently diagnosed with prostate cancer

Thank you so much for all of you!!!
We are going to see two doctors. One is in George Town university and other one in John Hopkins. Is anyone by chance met dr. Edward Schaeffer?

Thank all for your help

Re: recently diagnosed with prostate cancer

You didn't mention what these doctors do. Unless at least one is a radiation oncologist, I strongly advise you to also consult someone who is.

Don't assume the surgeons talk to the rad-oncs. Surgeons at UCLA were eager to operate on my Gleason 9, even though a radiation protocol offered literally twice the cure rate of surgery. (I only learned this later.) I'm pretty sure the rad-oncs at UCLA offered the superior protocol, but the surgeons never mentioned it.

Your description of the biopsy indicates intermediate risk. In this case, the data say that your husband would have better odds of cure with one of two radiation protocols, and probably a third usually used for higher risk tumors.

Re: recently diagnosed with prostate cancer

Hello,

Did anyone receive “Cyberknife” treatment or knows someone who did?

Any information will be greatly appreciated.

Thanks again

Nonna

Re: recently diagnosed with prostate cancer

Nonna,

Since no one has come forward with any first-hand information on Cyberknife, I am writing to let you know that there is a Yana Mentor named Neil Falcone who chose to go that way. If you go to the Yana homepage and type his name into the search engine, his story will come up for you to read. At the end of that story is his e-mail address if you want to contact him to learn more. Being a mentor, I am sure that he will be glad to assist you if he can.

By the way, in order to help members of this forum help you, you should answer questions that have been asked of you. I say this because, on March 1st, I asked you what your husband's age was, letting you know that it can have a bearing on his treatment options, but you did not respond.

I hope this new information helps.

Best wishes,
Alan M in the USA

Re: recently diagnosed with prostate cancer

Sorry Allen. I probably missed your question. In May he will be 58.

Thank you for the new info

Re: recently diagnosed with prostate cancer

Hi Nonna,

The primary reason why I inquired about your husband's age was because I recognized your forum name as the Italian word for grandmother; so, I thought that your husband might be considerably older than what he turned out to be. If, in fact, he had been much older, where realistically he had less than 10 years of life expectancy left ahead of him, then radiation or surgery would not be called for. Instead, observation is the recommended course of action.

Now that I know that he is 58, there are a couple of other things regarding his age that I want to make you aware of. There are some, like my non-surgical urologist, who believe that, if you are in your 50s, then you are young enough to risk the possibility of radiation therapy giving rise to tumors in your bladder or colon. Still others, including members of this forum, believe that the more advanced radiation technology being used today makes that pretty much a non-issue. Personally, I would ask for my radiation oncologist’s input during the consult.

Also, the other factor, having to do with age, is that the longer you are alive after treatment, the more susceptible you are to recurrence. If that were to happen after surgery, then you can have salvage radiation therapy, but it doesn't work the other way around, meaning that you can't have surgery following failed radiation treatment. At that point, you would likely have to turn to hormone therapy.

In pointing out these facts, I am not saying that I am opposed to radiation therapy for someone in their 50s. I am 58 also, but unlike your husband, I am on AS (an option that is not right for him). Still, someday, I may be faced with the need to make a treatment choice and, based upon input on this forum, I am particularly interested in proton beam therapy. However, before making any move I would first do three things. Recognizing that I don't have enough information on the various forms of RT to choose one over the other, I would first take Don Oberlin's advice and read Dr. Marckini’s book entitled "You Can Beat Prostate Cancer..." for a more thorough analysis of the various treatment modalities. Secondly, I would take my own advice and ask my radiation oncologist for his input regarding my age, and lastly, I would seek out Don's advice, since IMO, he is the go-to-guy for a layman's perspective on that particular treatment.

Lastly, I am not saying that HT is a bad option either. I don't think that all. In fact, I have read some very encouraging information on the forum about it, including Fred Woods’ use of ADT3 as his primary treatment.

In closing, I just want to correct your spelling of my name. It is Alan, not Allen.

Good luck with whatever treatment option you and your husband choose.

Alan M in the USA

Re: recently diagnosed with prostate cancer

Oops. I thought I had replied to your inquiry about Cyberknife, but it appears that I actually replied to someone else. So....

Cyberknife was much more hype than substance. It was heavily advertised as the greatest treatment ever; the very expensive equipment was sold to many hospitals, which then had to advertise it to recover their investments. Lots and lots of advertising. A couple of friends assured me it was the only way to go. But, as of 2009, when I first investigated it, it had not been shown to be AS GOOD as some other treatments available. There were no long term follow-up reports. It was a prime example of why you should never trust advertising, or well meaning friends.

I have reviewed Cyberknife recently; the few longer term reports I found related to kidney or brain cancer. Re prostate, there some newer entries of celebrity endorsements and the like. More hype, but nothing of substance, no long term prostate follow-up reports.

There has been plenty of time now. If Cyberknife has not posted any long term reports, I infer it is because they are not very good. If your time is limited, I suggest that you not spend any more of it on Cyberknife. There are other radiation treatments which have do solid long term track records of curing PC. Note that this is not an endorsement of radiation in general, just three specific protocols.

Re: recently diagnosed with prostate cancer

Hi Noona,
I was the same age as your husband when I was treated for prostate cancer many years ago. My gleason score was higher at 4+3, psa of 5.6, and I was staged T2b (the whole left side of the prostate). I chose to have treatment with radiotherapy and have done well. Feel free to pose any questions.
best wishes
john

Re: recently diagnosed with prostate cancer

There are lots of types of radiation therapy. Some of them produce the highest cure rates available; others, not so good. Nothing you read about radiation is meaningful unless it states the protocol used.

RETURN TO HOME PAGE LINKS