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Re: What to ask my Dr. tomorrow?


Thanks Fred and OC for your input.

Based on what we know so far--am I going to be able to work during all this? I wish there were no financial component and I could devote 100% to getting better without worry about bills, etc. But that isn't the case.

And secondly--why do I feel so well? And when might that change?

Thanks,
Jay

Re: What to ask my Dr. tomorrow?

Jay,

Most men can work during ADT3. Most men do feel well at this point in the journey. With the advent of the PSA test it's extremely rare that men have symptomatic disease at diagnosis. Most men with bone metastasis do not have symptoms
until very late stage disease.

Fred

Re: What to ask my Dr. tomorrow?

Jay, a friend of mine had a PSA reading much much higher than yours about 8 years ago. The initial prognosis was not good. He is still going strong after taking various new/experimental hormone treatments for periods like 6 months or so and then taking a similar period off so that the cancer doesn't build up an immunity to the treatment. I think his current PSA is about 4.

Re: What to ask my Dr. tomorrow?


Thanks for sharing that story. I have really not heard of those "off the charts" PSAs before. It's very encouraging being mine is 230.

Well, the scans came out positive and it has settled in my lymph nodes, a bit on my sternum and also in my pelvic bone.

My lower back is killing me and I feel nauseous. But it may just be stress.

Tomorrow I start with Degarelix and will eventually switch to Lupron.

I sure hope I can eventually be on an intermittent program as I'm just not crazy about what's going to happen to my body and don't really know what to expect.

Jay

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