Prostate Cancer Survivors

 

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Re: newbie needs help!!

Bioguy,

Another consideration; I had ADT3 from DR Leibowitz last year and had a biopsy at the end of the treatment that showed no prostate cancer. His website is Compassionate Oncology. He also offered high dose testosterone replacement after the completion of the treatment. His feeling is that if any cancer cells survived they have adapted to a low androgen environment and will not do well in a high androgen environment. I have a T level of 1500 and feel really good. I guess I know why athletes use this stuff. Keep in mind that if you do not do well on this therapy you can still have surgery or radiation. You are very young to be loosing sexual and urinary function.

Fred

Re: newbie needs help!!

I chose radical surgery 6 years ago by a top urological surgeon when I was 58. The surgery lasted 45 minutes and I experienced basically no pain afterwards and absolutely no leakage. The operation was no big deal. I think because of the experience and quality of the urologist. About 4 members of my golf club have had a similar experience with the same doc. I do now however need viagara to function and things are not as good as before. The others have the same complaint. I think I might do the new improved brachy if I had it to do again - but 6 years ago surgery was the safest bet on a percentage basis to get rid of the cancer. Good luck in whatever route you decide to go.

Re: newbie needs help!!

Hi Bioguy-

I was three years younger than you (46) when I was diagnosed in a similiar way almost six years ago. Like you I did a lot of research and tried to weigh the advantages and disadvantages of each 'modality' (to this day I hate that word)of treatment.

Someone mentioned in a previous reply to take your time and to carefully weigh the options. I wholeheartly agree with that advice. Your choice of treatment is very personal so don't let ANYONE sway you one way or another until you are completely comfortable with your decision. I remember the immediate level of peace I felt when I finally decided on my course of treatment.

I'm sure you have checked out the survivor stories on this site. While I can't speak about your situation of having low testosterone, I can relate to your concerns about having PCa at a relatively young age. I had all the same concerns as you do. I opted for proton treatment (with Dr. Rossi when he was at LLUMC) and have absolutely no regrets. I won't bore you with the details of my story, but if you are interested it is posted in the survivors section under proton therapy under "M P".

I'd be happy to answer any questions. All the best.

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