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lupron

hi all yana people i had a four moth shot of lupron end of june passed a kidney stone and now ending up w/ severe back and rib pain is this drug really that bad i had the monthly shot before and no problem my psa is .9 and free psa is 18.9 is ther an alternative to lupron ?

Re: lupron

There are many ways to control PCa without using Lupron or LHRH drugs, it is mind blowing when you have done them and seen them outperform them too. We have a system that enjoys profits and marketing and decides current standards to suit there best needs. Lupron has 75% approx. of market share on LHRH drugs and is nicely profitable.

Examples on new drugs after Lupron and other drugs fail us patients: Xtandi costs like $7,500 a month for aka 'super casodex' and Zytiga which does seem to work better than Ketoconazole was $4,350 a month last year or so and now is at $7,000-$7,500 thanks to marketing and seeing what the competition is charging. Alpharadin treatments around $69,000 and Provenge around $93,000 None of these are cures and really palliative and probably useful treatments. Love the price tags.

Here is stuff they don't prescribe but can work well too: DES 1 mg. (mine cost $130 per year, no patents, outperformed ADT3 I did for 2 yrs. too), estradiol patches (cheap also), estradiol gels (easy to use, now can be custom made doseages too), emcyt (Dr.Fred Lee- still alive 33 yrs. with incureable PCa on this drug), casodex, eulexin, nilandron, ketoconazole (cheap). Might be useful to use Avodart, proscar in conjunction with some drugs too (controversial).

Best to you...

Re: lupron

Bob,

I've just checked through your list to see just what the efficacy of your alternatives to Lupron might be. One is actually banned in Europe, several are oestrogen type products with significant side effects, casodex is recommended in conjunction with zoladex rather than instead of it, nilandron is really for use when mets have been confirmed and others are primarily for BPH. Whilst I don't doubt that in some situations all of what you suggest have use, as a general rule, I think the medical profession wisely plays safe with the standard approaches to ADT, ADT2 and ADT3. I shall not ask my consultants to shift me from Zoladex and Casodex at my stage in the game, based on my researches.

But as we always say in PCa the only rule is that there are no rules, so what I have said above needs to be viewed in that light!

Ed in England

Re: lupron

LOL- probably banned DES 1mg., well here is my real life experience in doing normal HT vs. the so called illegal DES.

I did ADT3 for 2 years (2002-2004), I have super high risk scenario (guaranteed to lose). Well I got monthly psa tests and had 8 slight rises while on ADT3 (Lupron-casodex-proscar), so it was failing me and I hated the side effects. After reading the Journal of Urology article on DES (lol) I decided I have to try it, also works on hrpca to some degree.

It lowered and stabilized my psa immediately, costs nothing $130 a year, no real side effects, no sweats and hot flashes, builds bone density (but remember it is junk and will kill you, they say!!). Well it worked well for 8 years after failing ADT3 in late 2004. Must be an error, all those psa tests and lesser side effects (-:}

So, yeah I trust the system 100%, all the docs are experts in all phases, as they project to patients. I fired that uro-doc in 2004 and my onco-doc whom wrote this Rx is my hero, the uro was a zero. Same uro-doc switched me from zoladex to Lupron without my asking, I saw the billing it was $700 more per visit for the same thing (lovely person $$$$$ full of the hypocritical oath). I see his interests were all about me (a cash cow).

Re: lupron

Hi Bob - please e-mail me on johan@amukalodgeuganda.com as I want to discuss this personally. Much appreciated!

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