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You should have been given a drug like casodex prior to Lupron (LHRH) type drugs, especially with your known parameters. So called induced 'flare' from the start up of Lupron could increase bone pains, you can search for such info and read up on this area.
PCa is very complex stuff, exceptions, anomolies and results vary, there are also versions of aggressiveness of cells, some very aggressive PCa's don't give off much psa to measure (other tests can reveal biology that is happening in your body). There are even variant types of PCa, sometimes not categorized or made known, especially by average pathologists (just showing it gets complex).
Although Lupron and other drugs can regress the PCa and evidence is shown on scanned mets patients, before and after...like in Dr. Strums book. How well it does so, probably varies just like patients results. There are drugs to assist with bone issues, you might ask about adding estrogen patches to cancell alot of side effects such as hot flashes and it assists bone density of which LHRH robs your bone density. You should be familar with drugs used on PCa, see www.hrpca.org for many drugs that can be tried. Nothing is overly simplistic in this, docs do not all agree on protocols and quality of life is also something to consider while fighting this dragon.
I was reading on this site, and my husband is in a very similar situation. He is stage IV, on Lupron, and his psa is way down, but his pain level is still very high. The doctor said it could be arthritis, which I find really hard to believe. I'm just curious how Linda's husband is, and if the pain was indeed from arthritis.
