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Thank you Scott! I am going to look into that as well. I am curious as to when you had it done. I noticed someone else on the site who had it done but a year later his PSA has started climbing again. That gives me pause but again with so few cases documented and for me to draw upon, any info is critical in my final decision. Our local Cancer Center began offering it last year (one of the 10 centers across the country). As it turns out, my second opinion is next week with a rad onc at that very same hospital. It is on the agenda and at the top to discuss.
I had it done from August-October 2011 at MD Anderson in Houston. It was a breeze, with the rectal balloon being the only minor daily inconvenience. Just this week I had a follow-up, and my PSA has already dropped 65% from the level I had immediately pre-treatment. My radiologic oncologist called it "quite good," which caused me to beam from ear-to-ear.
Please give proton therapy a hard look. I spent probably 200+ hours researching every possible treatment alternative under heaven (all forms of RP, all forms of EBRT, brachy, HIFU, Indian shamans :-)), before landing comfortably with PBT. I don't regret my decision for a moment.
wanted to update all here who have responded. First: Thank you for taking the time to reply. It is very helpful knowing there are others out there that have been where I am at present. A couple of you live in my hometown and I do plan to call you at some point to get the real scoop on what your treatment was like. In the meantime, I met with a RAD-ONC today (he spent almost 2 hours discussing with me and my family the options!). He seemed genuinely disturbed that my urologist even felt I needed a biopsy with a 2.9 PSA but as he said, "since pandora is now out of the box, you will want to do something." He felt that since I am young, I should get an MRI to better reflect the tumor or tumors present to see what I am really facing. He said I have very slow growing type and I can truly take my time to decide what to do - a far cry from what my urologist told ("You have weeks to make a decision"). He said my current doubling period is 10 years. I guess I am thankful I know what I have and that I can be proactive and not reactive. Tomorrow I go to see a different urology surgeon to get his take on things. Then i can sit back and digest everything. I am set up for the MRI so at least I will have a baseline and the RAD-ONC can tell me exactly what the tumor(s) look like and how I should respond. He suggested I might be a candidate for a new IMRT method using only 5 sessions instead of 43 but using a higher dosage. Anyone familiar with that? It's being used (with success) at Stanford, Michigan and elsewhere although I would be the 3rd in my town. Shorter treatment period equals less side effects (so far) that they have seen. Again, thank you so much for just being there as a sounding board. I would say you don't know how much it means but I know you all do!
Sorry, I can't answer your questions, but instead, offer the following...
When I went thru the decision process, six years ago, I was told that any sort of radiation treatment (brachytherapy, beam, etc), as a primary treatment potentially eliminated salvage surgery as a secondary treatment, should the need for secondary (or follow-up) treatment arise.
I don't know if radiation treatments have been refined to eliminate the radiation scarring that caused salvage surgery to be so 'ify'.
You may already know, or you may want to ask this question of the medical experts you are consulting.
It might assist others if you could share the answers here.
Thank you for your kind words, David. I know that you are not alone in appreciating the input from all the Yana men (and a few of their women).
The practise of using higher but fewer radiation doses is termed Hypofractionated Radiation if you want to search around for some references. Using the Site Search Engine and that phrase will bring you some links as will IMRT. The best known of the current hypofractionated radiation therapies has a registered trademark and is marketed as CyberKnife
Many of the claims made for hypofractionated radiation seem not to be supported by good independent studies and evidence of its claimed superiority. On the other hand, as one of the sites I found said, it does have the potential of creating a much better throughput for the radiologists since they can treat about five or six times the number of patients in the same time span.
Two years ago when I was initally diagnosed with low risk GS6 cancer I was talking to Dr Lee at Duke. At that time they were starting a trial where they would reduce the normal nine week treatment (45 treatments) to a two weeks (I believe it was only 7 treatments), but at a much higher dose. At that time I opted for AS so I didn't join the trial. You might contact Dr Lee at Duke to see if they are still offering the short IMRT protocol.
Recently I finished proton treatment at UFPTI where they were giving guys with low risk PCa the chance to try 29 treatments over 6 wks at a slightly higher dose instead of the normal 39 treatments over 8wks. I heard early "scuttlebutt" (Navy speak for rumors) that the shorter treatment seemed to be yielding similar results as the longer one in early findings.
As Terry alluded to: "Medicine is a business, and the purpose of business is to make money." The shorter the treatment cycle, the more patients can be treated, and the more money can be made. Also I think the heath care industry can see the handwriting on the wall that the cost of Medicare and other health services must be reduced in the future.
Oddly enough, during my stay at UFPTI, I talked to a lot of fellow patients, and most opted to stay with the 8wk plan especially if they were retired. The ones that opted for the 6wk plan seemed to be those guys still working or who could not be away from home for the additional time.
Joe (and all): I was offered a similar treatment here in my town - only with a new study that is only 5 total treatments. I have chosen not to do this because it is a trial and in meeting with a surgeon, I had my "A-HA' moment. I had been looking for a less intrusive way to handle my condition but a few other factors have opened my eyes. I have bilateral kidneys and both reside very securely by my hips and not up further where most people have them. When I met with the rad-onc last Thursday he said I would probably be okay but he could not guarantee that they would not recieve some "scattered" radiation. That concerned me although perhaps it shouldn't (I am diabetic - controlled by diet and exercise). The next day I went to see the surgeon at the same hospital. He was unlike most any other surgeon I have encountered. He took his time, laid out all options including radiation. A couple things really caught my attention. When he took a look at the CAT SCAN I had done, he got really curious and probably spent about 15 minutes just showing us frame by frame the entire scan. He was really interested in the kidneys but said that should not be a problem with Da Vinci from his perspective. Second - and most important - he said it is younger guys like me that make the good results on ED and long term incontinence go up. The younger patients by and large (with him anyway) have had very few SE and it is the older patients that bring the numbers down. He also mentioned that it would not be fun and he did not sugar coat anything - going so far as to describe the catheter (which I actually fear the most) but assuring me it hurts more going in but that I would be deeply asleep at that point. He has done over 2000 PC removals and around 400 on Da Vinci. He also had a sense of humor (which is very important to me). We sat down and went through a Sloan Kettering program which basically graded me 98% cancer free in 10 years. And it was around 90% in 20 years (equal to general population). Radiation could not give me that assurance b/c it has not been around that long. So now I am researching surgery - the one thing I really did not want to do! Anyway I look at it, it's going to be a pissy month or so (pun intended)- whatever month I choose. The next step is up to me. Sigh.