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i was rated gleeson 9 and had bone scans and MRI that showed no cells had escaped the prostate, then had radical surgery, with lymph nodes removed showing all clear.
My two month check showed a psi 0.84 and after a cat scan showed lymph node size 4 ctm in my abdomen close to my aorta, biopsi showed positive.
I have now been put on hormone treatment with a new psi 1.1 after only 2 weeks after 0.84.
The management of advanced, metastasised disease can be a complex affair and there are not very many men on this Forum who have had a deal of experience. I hope some of them will respond.
Also see www.hrpca.org (proven treatments area)
Join www.paactusa.org (newsletters or find there free pdf files tab and read the newsletters for free...excellent docs with up to date articles...this is intended for advanced disease patients, too).
You were probably given Lupron or an LHRH drug and not given casodex prior (typical scenario in many patients). Your psa should decline and soon enough, if it continues a rise while on LHRH drug, you have a more aggressive type of PCa and may need multiple drug options to consider. Control of the disease and maintaining quality of life are the goals that can be found, do read or look at Dr. Myers, PCRI conferences 2011 video, Dr. Scholz and other videos and such for info. You should read about zometa and other options for possible bone mets, which could show up later.
I wish everyone were told up front the limitations on scannings, they cannot detect micro mets or small amounts of PCa elsewhere in the body (it is factual). Totally contained verbage from docs is a best guess estimate, there are post surgery patients whos additional pathologies on the extracted gland even with perfect parameters for saying 'all clear and contained', and later found not to be the actuality of it all. Usually PCa shows up in lymphnodes first and then bones, but can invade soft tissues and even the brain (more rarely). Being proactive on your own disease is probably worthwhile as to seeing all your possiblec choices, hope is eternal.
