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It seems from what you say that your disease has become castrate-resistant prostate cancer (CRPC)- the main cause of prostate cancer mortality. There are many variants in treatment options, some of which are experimental. An anonymous person who was concerned about your position has sent me the extract of a recently published report on a therapy that has proved very successful for a man who seems to have been in a similar position to yours.
The patient we described responded remarkably well to combination treatment with Cyclophosphamide, vincristine, and dexamethasone (CVD) plus diethylstilbestrol (DES). He was a 77-year-old man and in May 2008 his prognosis was dismal. He responded quickly with no clinically significant toxicity to the CVD plus DES therapy. In January 2011, nearly 3 years after his initial treatment, he remained alive and well.
The study concludes CVD plus DES may help selected patients with advanced CRPC who are too ill to tolerate or benefit from other therapies.
The case was reported in Clin Genitourin Cancer. 2011 May 14. Prolonged Remission of Fulminant Castrate-Resistant Prostate Cancer: A Case Report.Bilen MA, General R, Tu SM. Source: Department of Internal Medicine, Baylor College of Medicine, Houston, TX.
You might like to discuss this case with your medical people
Terry,good bit of advice will look into that treatmnt myself.
Quick update on myself,same problem as John.
Steroids such as prednisone and dexamethasone are bad news on prostate cancer because they defy the laws of Physics,where does the energy come from,well apparently from the back of the thy muscles and at the muscles under the tops of the legs,thus weakening the patient further.
I have found the low dose 12.5 micron 3 day patches to be far superior to 5 and 10 mg oxycontin,oxynorm.
I have been started on 5mg morning and 5mg at night of methadone,works wonders,targets a different pain pathway,the local hospice has had some good results with this tiny dose,that means I am on the equivqalent dose of morphine of 40 mg per day,very low,but improved appetite.
Balancing the correct morphine dose is very important to appetite,not too mutch,not too little.
NOTE these are only my opinions and observations,not nessesarally medical fact.
But go for Terrys link and let us know how you get on ,David
I so far have been keeping ahead of the grim reaper and am damned proud of it. We live in a world of pills and exotic treatments for so many things, however on the advice of my physician here in Arizona he told me (quietly) to buy a bag of good marijuana, cook it into dessert recipes like cookies or brownies and start with 1/2 of one brownie. My appetite and pain went away within 30 minutes. I then ate 2 tacos. AND kept them down. I now eat 3-4 small meals a day and feel better, have a bit more energy , and more than anything my mind is off the grim reaper. Sometimes you just need to remember that Mother earth put things here for us that don't require a prescription and work wonders. This is only a suggestion. Do what you need to for your time on this earth. Be well. I wish you peace my friend.
