This forum is for the discussion of anything to do with Prostate Cancer. There are only four rules:
No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
No harvesting e-mail addresses for Spam;
No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making
Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.
Since this is an International Forum, please specify your location in your post.
Every now and then I get an update, or even a new story, where there is no means of identifying the person sending the story or update in. No Name, no e-mail address, nothing. There is nothing I can do with these submissions – I can’t even mail the person to ask for information. There were a couple of these last month, so if you’ve sent in any updates that haven’t appeared yet, maybe you forgot to fill in the form.
NEW POSTS:
GREG D newly diagnosed with GS 8 T3a disease and chose Abiraterone Trial – Lupron + Abiraterone + RP (Radical Prostatectomy)
EDWARD WAKELEY chose RP (Radical Prostatectomy) for his April 2011 diagnosis
JOHN BERKERS joins us as a Silver Member and is in his sixth year of AS (Active Surveillance)
JOHN G after due consideration has chosen AS (Active Surveillance)
CARL S chose RP (Radical Prostatectomy) and has ED issues
ROBERT DEAN diagnosed in April and considering IMRT (Intensity Modulated Radiation Therapy) + Brachytherapy or PBT (Proton Beam Therapy)
ANT KNE diagnosed last week and considering RALP (Robotic Assisted Laparoscopic Surgery) or PBT (Proton Beam Therapy)
BILL MALLETT results of second biopsy caused him to move from AS (Active Surveillance) to RALP (Robotic Assisted Laparoscopic Prostatectomy) and he has some problems.
UPDATES FROM MEMBERS:
WENDELL JEFFERIES still has an undetectable PSA after being on ADT vacation following EBRT (External Beam Radiation Therapy) for failed RP (Radical Prostatectomy)
JACK LONG newly Silver Member with undetectable PSA four years after RALP (Robotic Assisted Laparoscopic Prostatectomy) and no side effects
RICK DANCER undetectable PSA and no side effects after Calypso EBRT (External Beam Radiation Therapy)
PAUL A now has a detectable PSA after his RP (Radical Prostatectomy) and is still very opposed to AS (Active Surveillance)
IAN VAGG a bit concerned because his PSA is up to 4.1 while he is on ADT (Androgen Deprivation Therapy)
DAVID BAGNALL has decided on EBRT (External Beam Radiation Therapy) - Calypso
RICK GOINS PSA still falling three years after EBRT (External Beam Radiation Therapy)
DAVID MANSFIELD chose HIFU (High Intensity Focused Ultrasound) and is happy with the choice – no side effects and a PSA of 0.70
PAT INGLESE almost two years after HIFU, PSA is undetectable and apart from minor bladder stricture, no problems
RON GERARD chose AS (Active Surveillance) but while on vacation in Mexico chose to have a bone scan which was incorrectly interpreted as showing widespread metastases leading to a recommendation of orchidectomy which was declined
ERIC TAYLOR Gold One Star member diagnosed in 2000 with GS 9 and choosing RP (Radical Prostatectomy) still has a 0.10 PSA and is heading off on another travel adventure, proving that there is life after prostate cancer.
KURT BRUST ten weeks out from RALP (Robotic Assisted Laparoscopic Prostatectomy) somewhat concerned about ED
REMI MORRISSETTE after having a Color Doppler scan is considering abandoning AS (Active Surveillance) and moving to focal therapy
LAWRENCE BOOKBINDER returns as a Gold One Star member eleven years after his decision to choose AS (Active Surveillance)
STEPHEN DOFELMIER his nine month check up after Brachytherapy shows his PSA down and his side effects dissipating
GARY POWELL PSA still undetectable more than three years after RALP (Robotic Assisted Laparoscopic Prostatectomy)
LEO CROWLEY PSA stable fifteen months after Brachytherapy – no side effects
RANDY OGLE PSA still dropping after Brachytherapy and back to mostly normal
GREG KAMPA PSA stable after dropping from PBT (Proton Beam Therapy) very minor side effects
MAX HUNTER chose ADT (Androgen Deprivation Therapy), EBRT (External Beam Radiation Therapy) and Brachytherapy and has a PSA of 0.10 with ED
FRANK STREIFF had a failed RP (Radical Prostatectomy) and although his PSA is down to 2,100 on Taxotere, Frank feels like calling it a day Ann is not so sure
GARY POWELL Silver Member gong for Gold still on Chemotherapy vacation after failed RP (Radical Prostatectomy), EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy) – regrets the EBRT
BOB BISHOP four months after starting ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Therapy) his PSA is down
ROGER JAEGER Silver Member has had his Provenge shots after failed ADT (Androgen Deprivation Therapy) – no side effects
MAZHARUL HUQ has completed his Brachytherapy procedure with no problems
NEIL FALCONE two and a half years after his Cyberknife his PSA remains at 0.30 and he has no side effects
TIMOTHY HOTUJEC Silver Member PSA down to 0.20 on ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy)
ROBERT CREW all returning to normal after EBRT (External Beam Radiation Treatment) with ne0-adjuvant ADT (Androgen Deprivation Therapy)
NEW LINK
At the suggestion of new member Ant Kne I have included a link on the RESOURCES page to the book written by Health Care advocate Laurie Todd entitled “How to fight your insurance company and win”
