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amador,
The doctors are giving you the strongest drugs your body can withstand. Jevtana is a very strong drug with lots of side effects but it should help. The doctors are focused on trying to control you're pain, which you can tell them directly, and don't need to know your PSA number. You are getting the strongest pain killer available so they can't do much more there.
If you still can, it is always worthwhile to look up the drug on the internet so you understand what to expect from the side effects and how long for the drug to start reducing the pain.
I will certainly be thinking of you and hope they can find the right combination of drugs for you.
I'm sure the shot Amador got was Neulasta. His doc should have had him on Claritin - the day before, the day of and for two days after the shot. Neulasta is pretty nasty stuff, hence its nickname "neu nasty". I had a Neulasta shot 2 weeks ago with no pain, thanks to the Claritin, I'm sure. I had a Neulasta shot several years ago without the Claritin and it was pretty horrible. I've just started on Jevtana also.
Gordy. I thank you again. I think that you answered my prayer. May the pain go away with Claratin. If this does not work, I don't know what will. THere are a number of blogs out there where patients express their experiences with Neulesta and CLaritin.
I don't know if you ever joined the ADVANCED PROSTATE CANCER FORUM If you didn't please go along there because there are many men there who may be able to help you.
I drew the attention of DAVID EMERSON to your problem because it sounded like the problems he went through. Unfortunately he could not post a reply directly here, but this is what he asked me to post for him:
I'm not an expert but the pain sounds similar to what I went through last June. I'm guessing, but it sounds like the mets/tumors in either your femur or your hip joint are causing the pain. An MRI helped identify my issue and it was only fixed through 14 radiation treatments. The pain meds helped but never fully relieved the pain. I would ask your doctor to refer you to a radiation oncologist.
I hope this helps - but you might like to e-mail David directly - his address is on his story.
