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Greetings to all who visit this site - sharing your knowledge, experience and honesty are overwhelming!
My situation goes has follows,
Had first PSA level done 2 yrs ago = 6.0
Last month went up to 8.0 but what prompted my decision to have bx was one episode of gross hemoturia.
I am 60 years and extremely active -have qualified to run in this year's Boston marathon along with my son, who also qualified.
Bx results showed 8 out of 12 positive (majority 50% range two at 70%)
Of interest is that I have been dxed with mucinous adenocarcinoma of the prostate. (supposedly more rare and more aggressive)
Will be seeing urologist in the next few weeks for treatment options.
What really has me concerned has to do with heredity. My father, in his early 70's, went in for a AAA repair. The surgeon found tumors on his liver and probably elsewhere so the decision was made to close him back up thinking he would die soon. However, the tumors were dxed as being slow growing and he lived another 7 years before his aneurysm blrw out. (He refused second surgery). I unfortunately have no clue has to where his cancer originated and all his records are not available.
I have this feeling that if heredity can lead physicians to predict if a person is at risk for cancer; could it also predict that my prostate cancer is of the slow growing type and I should be happy with living another 10-15 years without the worry of Prostate tx options.
Thanking you all in advance for any and all thoughts!
Tom,
8 positive cores indicate a large amount of cancer. If you do indeed have a varient it would be wise to get an opinion from a medical oncologist who has experience with PC varients as most doctors who deal in PC are totally clueless about varients. (there have been 24 varients identified and some are very agressive). Someone like doctor Charles Myres in Earlysville Va or Dr Mark Scholz in Marina Del Rey Ca would be familiar with varients.
JohnT
I too have been diagnosed with mucinous prostate cancer. I'm frustrated in learning much about it. Do you have any sources for information? What kind of treatment have you had? I'm presently having hormone therapy (Cassodex and Eligard) in an effort to shrink the tumor. It's too big for surgery and radiation would likely harm other organs. Once the tumor is shrunk enough, radiation will follow with surgery after that.
Mucinous prostate cancer is, as you have probably discovered a rare form of the disease. So much so that we have only one contributor to the Yana Survivor Stories page who told us about how he dealt with his diagnosis – that is Tom Randall . It was interesting fo me to see his reference to a 2007 report that claims Mucinous Adenocarcinoma Of The Prostate Does Not Confer Poor Prognosis. Now as you may know or you will find out, there is no certainty in any aspect of prostate cancer, but it is good to find that there is some positive evidence about mucinous prostate cancer.
I must say I am concerned about your proposed treatment options. I’m guessing you may be in Britain from your reference to Eligard which is apparently used more in UK than in other countries. The thought of having surgery AFTER radiation is usually considered a poor idea because the changes in the gland make surgery very difficult.
If it is possible for you to get a good second opinion, preferably from an oncologist rather than a urologist, it may help you to understand your options better.
