This forum is for the discussion of anything to do with Prostate Cancer. There are only four rules:
No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
No harvesting e-mail addresses for Spam;
No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making
Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.
Since this is an International Forum, please specify your location in your post.
Phew! This’ll teach me to go wandering around the country like a gypsy
NEW POSTS:
DARRYL HAYWARD comes in as a Silver member – diagnosed in 2004 and chose EBRT (External Beam Radiation Treatment) plus adjuvant ADT (Androgen Deprivation Therapy)
FRAN K staying with his chosen Active Surveillance path despite a slowly rising PSA
GARY KOMANIECKI chose RP (Radical Prostatectomy) and believes it was a good choice
JOHN HADEN joins us as a Gold member with some concerns about possible failed RP (Radical Prostatectomy) and possibly ADT (Androgen Deprivation Therapy)
MAX HUNTER going for the full Monty with ADT (Androgen Deprivation Therapy). EBRT (External Beam Radiation Therapy) and Brachytherapy for his GS 9 diagnosis
NORRIS TEACHWORTH chose Brachytherapy and is experiencing some bladder and bowel problems
JOHN FERGUSON chose RALP (Robotic Assisted Laparoscopic Prostatectomy) and had some problems with bladder spasms
EDWARD ROGE joins as a Gold Four Star Member after RP (Radical Prostatectomy) in 1996 which failed is concerned about his ADT (Androgen Deprivation Therapy) failing
KELVIN CHALKLEY is our first resident of Greece to join. He picked up a nasty diagnosis on holiday in Australia PSA over 300, GS8 T4 and is on ADT (Androgen Deprivation Therapy)
CHARLIE BARNES comes in as a Silver member with a bad reaction to Lupron after failed Brachytherapy
UPDATES FROM MEMBERS
MARTIN SACHS Gold one star member diagnosed in 1999 chose Brachytherapy with adjuvant ADT (Androgen Deprivation Therapy)
BRIAN HELLER diagnosed with a GS9T4 disease and a PSA of 47, he is battling with Chemotherapy after failed ADT (Androgen Deprivation Therapy)
JACK ROWINSKI Silver member with failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Therapy) battling strictures from radiation damage
WAYNE S three years after his RALP (Robotic Assisted Laparoscopic Surgery) his PSA is still 0.20 ng/ml
MIKE MCINERNEY still with ED problems after his RP (Radical Prostatectomy) after diagnosis in 2008
PETER BOON PSA seems to have hit his nadir after his neo adjuvant ADT (Androgen Deprivation Therapy) and EBRT (External Beam Radiation Therapy)
LEO CROWLEY coming up to 11 months after Brachytherapy and all’s well
JACK JENNINGS Gold three star member still has an undetectable PSA 147 months after his ProstRcision® therapy and has some excellent advice for the newly diagnosed
M BONZ undetectable PSA after RALP (Robotic Assisted Laparoscopic Prostatectomy) but some ED issues
BOB ARTHUR still on Active Surveillance and believes he has an indolent form of the disease
E G B chose HIFU (High Intensity Focused Ultrasound) and was recently concerned about an upward move to 0.30 in his PSA
GARY POWELL some ED issues after RALP (Robotic Assisted Laparoscopic Prostatectomy)
GREGG MORRISON Platinum Member (diagnosed in 1991) and co-founder of the Yana site is in bad way with various health issues as might be expected in a man in his 80s. Wife Kerry is battling and I’m sure they’d appreciate a note of support – especially from any of the old timers who might remember them
JOHN STEVENS ten months out from PBT (Proton Beam Therapy) at Loam Linda his PSA is still going down – slight rectal bleeding
PHIL Z PSA down after his IMRT (Intensity Modulated Radiation Therapy) following failed Active Surveillance
CHARLIE DAVIS Silver member who initially chose Watchful Waiting and went to ProstRcision® when his PSA rose; some ED falling PSA
RICHARD F decided to ge a second opinion on his biopsy results and was told that his diagnosis was not correct he is now on Active Surveillance
TOM CAT three months after RALP (Robotic Assisted Laparoscopic Prostatectomy) he has no serious ED problems and only stress incontinence
RANDDALL LEE Silver Member chose ProstRcision® and has a low stable PSA
DAVID N chose RP (Radical Prostatectomy) for his GS 9 diagnosis and his urologist is urging him to start Lupron: should he/shouldn’t he?
JOHN CHILDERS Silver Member with undetectable PSA seven years after RP (Radical Prostatectomy)
JOHN W four years after his RP (Radical Prostatectomy) and all is well
PHRED X concerned about rising PSA after combined Brachytherapy and EBRT (External Beam Radiation Therapy)
RON MURPHY diagnosed with a GS 9 tumour in 2007 he shoes ADT (Androgen Deprivation Therapy) plus EBRT (External Beam Radiation Therapy) and HDR (High Dose Radiation Brachytherapy) and is doing well his story is a long and detailed one, but well worth reading
RICHARD PERBIX had an unusual salvage therapy for his failed RALP (Robotic Assisted Laparoscopic Prostatectomy) – ADT (Androgen Deprivation Therapy) EBRT (External Beam Radiation Therapy) and Brachytherapy
RICK GOINS two years after his EBRT (External Beam Radiation Treatment) and his PSA is still trending downwards
DOUG HARVEY is concerned about a PSA of 0.11 ng/ml after RP (Radical Prostatectomy) and is considering EBRT (External Beam Radiation Treatment)
CHUCK MAACK Platinum Member diagnosed in 1992 has been watching his PSA slowly rise after failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Treatment) and feels it is now time to move off his ADT (Androgen Deprivation Therapy) vacation
DAVID MUNOZ still having urinary and sexual issues after his Brachytherapy in January this year
REVISED PAGES:
A couple of additions:
1. RESOURCES these new links result from a recent exchange on a Mailing List made me realize that it might not be easy for the partners of men with prostate cancer to find support material – and that there was little that encouraged the men to think about the issues faced by their womenfolk
2. ITEMS TO TAKE WHEN HAVING CRYOTHERAPY – there are links on the site to lists of suggested equipment to ease the journey through Surgery – this one suggests items for Cryosurgery
3. THE ELEPHANT IN THE ROOM – additional link to The New Prostate cancer Infolink item on the role of hospice care and its potential benefits — in terms of quality of life and quality of death
And finally, for something a little lighter DIY THERAPIES could a man using anecdotal evidence carry out his own therapy?
I am now up to date with all entries that I have received. If you have submitted your story or an update and it has not appeared on the site or I have not acknowledged it, please e-mail me at terryherbert42@gmail.com If you haven’t sent in an update for the past 12 months, please consider going along to the UPDATE PAGE and sending in your news – if you want to send in your story for the first time then JOIN US
