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diagnosed with PC in Dec of 08. Age 57, On Dec 9th, 2008 visited Dr. Robert Bahnson at Ohio State University Urology office. Was told that there was a tumor and it was large which was missed by two previous trips in 8 months to a local ER at Dublin Methodist Hospital. OSU Hospital Dec. 12th 2008:Ct scan urinary bladder wall is thickened, prostate moderately enlarged measuring 5.8cm in AP diameter and 5.5cm in transverse diameter. Had total body bone scan and 12 days of reaction to same that left me without normal physical functions.
Only 2 cores were taken of the prostate, one bent the needle, 1st 1.5 cm in length/.01cm diameter 2nd 1.8cm/.01.adenocarcinoma of the prostate, Gleason grade 3+3=6, with foamy gland carcinoma features, measuring 3mm (20%) 1 out of 2 cores. tumor is interacting with bladder. NOT IMPRESSED with above Dr.s
Dr. Fred Lee, 2-11-09, color doppler ultrasound scan found advanced cancer in prostate as well as invasion into bladder. Dr. Lee's opinion that gleason is much higher than 5's. PSA 56.65 12-08-08 and 121 in Jan. 09. 4 days on Casodex PSA 83 Feb. Casodex reduced to one a day and PSA <.08 in May 09 after having original catheter in for 6 months. Catheter dropped out in July of 09. Sept. 14, still <.08 and added 1mg Terazosin to mediate Dihydrotestosterone. PSA 3/10/10 less than 0.1 NOTE new lab and as low as they register. Stopped all Casodex and Terazosin May 31 going intermitent. PSA July 15th <0.10.
Why don't you set out your story, as more than 950 other men have, in the format used on the site. In case you haven't visited the site, you can see the indexes to the stories here TREATMENT EXPERIENCES
Go along here JOIN US if you'd like to do that. Your story will then be accessible by the 900+ daily visitors to the site.
Terry I advised Andrew to do this and maybe it is already submitted now, will know in a day or two if you have it posted. I met Andrew on another website in late 2008 and at that time he was in a huge quandry as to what to look at doing and especially without insurance and much money.
His botched biopsy session is very noteable, first case I knew of whereby the doc didn't get it finished and Andrew found out the doc had to be rushed off elsewhere during start of biopsies, so this 'teaching hospital' has maybe an intern or somebody apparently less qualified at the helm...bent the second needle(unsample therefore) and aborted doing the remaining likely 10 more biopsies. This is just the beginning of lousy medical analysis in his case, which we are friends and talked about alot of this.
Andrew do you wish to add discussion herein about finding out about Paactusa.org (advocacy group) and there help in getting you for analysis by Dr. Fred Lee and then further things that happened and how you got to find a Michigan oncologist whom helped you the most, even though you were techincally not even his patient, yet. You will probably post that at 'experiences/mentor' list, but might also elaborate on some of that herein...if you wish to add such. Your journey and multiple opinions and findings is a real eye opener to say it mildly. Glad you came here and probably can help others without insurance and money to find out what is possible.
This oncologist doctor told you that the catheter would likely fall out on its own using casodex awhile, turned out that is exactly what happened in your case...that was additionally interesting and I have the same oncologist whom I am pleased with confirms he knows things.
Andrew sent in his story on Friday. I'm way behind with the updates - backed up to Sunday last week and with the Grand Final of the Aussie Rules being played today there won't be much work done until tomorrow!!
I'll get there in the end, but it may take a while....
