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Clearly everyone is back on deck after their summer holidays and catching up with their e-mails because I have had a flood of updates and some new experiences posted. I’ve caught up as well as I have been able – I haven’t processed entries received since Saturday last week but should be able to get those done in the next few days. If you sent in your entry before then and I have not acknowledged it, please mail me at terryherbert42@gmail.com
LOST MEMBERS:
I am sad to report the deaths of a Member:
RICHARD JOHNSEN diagnosed with a low PSA of 4.0 but a GS tumour in 2007, Richard passed last month, pre-deceased by his wife who passed in April from Pancreatic Cancer
M BONZ diagnosed in July with a GS 9 at age 47 and chose RALP (Robotic Assisted Laparoscopic Surgery)
MIKE K diagnosed in July 2008 and chose RALP which failed followed by IMRT (Intensity- Modulated Radiation Therapy) leaving him with ED and severe Climacturia – no wonder he is depressed
BRYANT WINTERHOLER surgery would have been his choice but health reasons got him into EBRT (External Beam Radiation Treatment) with neo-adjuvant ADT (Androgen Deprivation Therapy)
ROBERT WRIGHT diagnosed in June and booked in for RALP (Robotic Assisted Laparoscopic Prostatectomy) but now not so sure
WILL H joins us as a Platinum member – diagnosed and treated in 1994 for a GS 9 tumour he has an interesting take on this disease
JOHN STEVENSON has chosen Active Surveillance but his oncologist feels he should have treatment
BOB NEMO was on Watchful Waiting for two and a half years but is now trying to choose between the radiation variants
UPDATES FROM MEMBERS
LEN AIREY Silver member happy with the outcome of his RP (Radical Prostatectomy) five years ago. [I always think this story of Len’s is a prime example of the value of the anecdotal material on the Yana site (and other sites), which is denigrated by the ‘scientists’ who say only published studies have any value. It tells how his surgeon discovered a better method of dealing with his stricture after contacting the US surgeon of another Yana member who had a similar problem
PAUL MCARTHUR Silver member with a bit of a different problem – he believed the predictions that he would die within five years after his RP (Radical Prostatectomy) and he hasn’t
STEVE PITTELMAN two years after Brachytherapy he has no side effects but may be experiencing a PSA ‘bounce’
TED LARRISON although he has urgency and ED issues his PSA is undetectable two years after RALP (Robotic Assisted Laparoscopic Prostatectomy) and he’s enjoying life
B H two years after RALP (Robotic Assisted Laparoscopic Surgery) some urinary issues no ED problems, no PSA
MIKE BASS 20 months after RALP (Robotic Assisted Laparoscopic Prostatectomy) only problem is mild Peyronie’s Disease
BILL RAU long time ‘cyberpal’and Yana supporter Gold Three Star member diagnosed in 1997 counts his blessings thirteen years after his HDR (High Dose Radiation Brachytherapy)
RON M twelve months after RP (Radical Prostatectomy) has some leakage and ED problems
MEL PANTHERSFAN still happy with his choice of PBT (Proton Beam Therapy) in Florida
TOM C chose Brachytherapy and has hit his nadir of 0.17 ng/ml after two and a half years
REG B has had a satisfactory drop in PSA – down to 6.0 from diagnosis level of 1,400.0 – from combined ADT (Androgen Deprivation Therapy)/Chemotherapy
DAVE CURTIS an enlightening report on his a penile implant for ED following RALP (Robotic Assisted Laparoscopic Prostatectomy)
TIMOTHY HOTUJEC Silver member was on a Lupron holiday after failed RP (Radical Prostatectomy)but a PSA rise to 0.50 will get him back on
CHRIS B chose RALP (Robotic Assisted Laparoscopic Prostatectomy) in July and has no ED or continence issues
ERIC CORDINGLEY has chosen Active Surveillance after further tests indicated his diagnosis was not an aggressive form of the disease
RICHARD VANCE a saturation biopsy identified one positive core of GS 6 disease leading to a choice of PBT (Proton Beam Therapy) for which his insurers will not pay so he has put his house on the market
TOM Z has decided that RALP (Robotic Assisted Laparoscopic Surgery) is for him but is worried about side effects
ALAN EVANS PSA dropping nicely after his Brachytherapy and Testosterone rising after his adjuvant ADT (Androgen Deprivation Therapy).
DAVID F007 has had an undetectable three month PSA after RALP (Robotic Assisted Laparoscopic Prostatectomy) – sexual function ‘pretty good’
DAVID MANSFIELD maintaining his position as the most terse entry on Yana – he has had HIFU (High Intensity Focused Ultrasound)
GOVIND SHARMA another succinct report – has completed PBT (Proton Beam Therapy), presumably at Loma Linda
EDWARD RUMIK chose RALP (Robotic Assisted Laparoscopic Prostatectomy) in July – so far so good
AL DILGER has finally decided on HDR (High Dose Radiation Brachytherapy) at UCLA
CHARLES NO no incontinence or ED problems two and a half years after RALP (Robotic Assisted Laparoscopic Prostatectomy) but has a variable PSA
HUGH ARMITAGE continues to enjoy life after his PBT (Proton Beam Therapy) at Loma Linda in May 2009
RON CARTER Silver member chose Brachytherapy six years ago but is now developing ED and bowel incontinence problems
ALBERT PUGH diagnosed with a GS 9 tumour in 2006 he had RP (Radical Prostatectomy), EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy) before becoming androgen independent when he started on a chemotherapy regimen which has his PSA down low
RICK DANCER enthusiastically endorses his Calypso® choice three months after completion
TERRY C our only member in Beijing has rejected PBT (Proton Beam Therapy) for the moment and has taken the Active Surveillance route
TOM KEATING a second biopsy, after taking Avodart found no significant disease so he is now on Active Surveillance
RICHARD HINTERMEYER Pam brings us up to date with Richard’s PSA slowly rising during his ADT (Androgen Deprivation Therapy) holiday
LYNN METTS four years after RP (Radical Prostatectomy) at age 47, with occasional leakage and ED he sometimes wonders if surgery was his best choice
DAVID REYNOLDS moved off Active Surveillance after two years and a second positive biopsy and chose EBRT (External Beam Radiation Therapy)
JOHN BARRACKMAN has decided on the Calypso® EBRT (External Beam Radiation Therapy) and starts on Sept 21
MICHAEL SHANNON has had his salvage EBRT (External Beam Radiation Therapy) for failed RP (Radical Prostatectomy) and his PSA is dropping
TONY RYAN glad he chose Active Surveillance – his reasoning is interesting
JAMES SCHWARTZ continues his story of his ADT (Androgen Deprivation Therapy) after failed RP (Radical Prostatectomy)
REVISED PAGES:
A couple of additions to the How to Survive PCa page:
Introducing GEORGE HARDY who, having recovered from the awful effects of his ADT (Androgen Deprivation Therapy) found he had sufficient energy to spare and volunteered to help me with the management of reminders to the slackers who don’t automatically update their stories. Thank you George!
And finally, for something a little lighter CONVENIENCE new Cartoon on the TROOP C page
