Prostate Cancer Survivors

 

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NIH Quality of Life Survey

As a member of the "New" Prostate Cancer InfoLink Social Network, I received an invitation today to participate in an interesting-sounding survey. The survey is for US-based prostate cancer patients and is being carried out by the National Institutes of Health and the Johns Hopkins University Bloomberg School of Public Health.

The survey study's title is a mouth-full:
The Role of Social Comparisons in Coping and Quality of Life following a Prostate Cancer Diagnosis

The stated goal is:
To learn more about how men who are diagnosed with prostate cancer deal with the disease.

I am awaiting my username and password in order to participate, but the intro asks: "If you know of other men who may be eligible to participate, please consider letting them know about this study".

So, fellow US YANA members who have been diagnosed T1b/T1c/T2a/T2b/T2c, between the ages of 18 and 70, and have never been diagnosed with any other cancer except for skin cancer that was not melanoma...

If you are interested in participating, Please visit the survey's home page:
http://pc.nichd.nih.gov/index.html
for more information and instruction on how to continue.

All the best from Indiana,
Roger Carnell

Re: NIH Quality of Life Survey

Aloha,
Took this survey last night. It did cover a lot of the aspects of having PCa, and did get into the associated side affects.
One question was about who you compared yourself to with your present condition. I've never compared myself to anyone with PCa. I do know some men who did not have any side affects (very good starting conditions) from EBRT and I have a friend who got bladder cancer 8 years after EBRT.
Joe

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