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Sorry that there was another bump last Sunday when the site went down for about 10 hours – cause unknown. Looks as if I’ll have to bite the bullet and move servers sooner rather than later. I’ve got a lot on this week – friends visiting, medical appointments and the end of the footy season coming up, so getting my priorities right, there may be some delays in posting updates over the next ten days or so. My apologies but………
CHANGES TO PAGES DR GERALD CHODAK who is known to some of you has set up a FaceBook account in addition to his acclaimed videos and will be publishing a book aimed at helping newly diagnosed men understand their options. Links to all these items are on this link
A link has been included to sex therapist Bettina Arndt's new book, WHAT MEN WANT - IN BED which she wrote after contacting a number of Members of the site about their ED experiences and how they and their partners coped.
Finally – another MiniPoll (only six quick one stop questions) to help focus on what you were told when you were diagnosed at DID YOU GET WHAT YOU WANTED?
NEW POSTS: JOHN M chose PBT (Proton Beam Therapy) in Florida and had a good experience
STEVE SWIFT chose Active Surveillance at age 57 and second biopsy was negative
TODD SEALS diagnosed in 2006 at age 42 with stage T4 and a PSA of 3,200+ he chose ADT (Androgen Deprivation Therapy) and has an interesting story to tell
BOB EYETAT diagnosed last Friday and heading for RALP (Robotic Assisted Laparoscopic Surgery) for low risk diagnosis
UPDATES FROM MEMBERS ROBERT E still on Active Surveillance but concerned about PSA level despite his history
AREK DANIEL good news update after RALP (Robotic Assisted Laparoscopic Prostatectomy) four years ago at age 41 – undetectable PSA and no side effects
FRANK TARANTINO one of our Platinum members – diagnosed in 1993 – still on ADT (Androgen Deprivation Therapy) after failed RP (Radical Prostatectomy) but has a rising PSA
T V two and a half years after his HIFU (High Intensity Focused Ultrasound) therapy has had significant urethral stricture problems
T WESTON Gold Four Star Member chose WW in 1996 and finally moved to intermittent ADT (Androgen Deprivation Therapy) when his PSA hit 60.0 ng/ml
JEFF TAIT seventeen months out from PBT (Proton Beam Therapy) and no side effects
KEITH TWEED is considering NanoKnife IRE (which seems to be a somewhat experimental therapy) if his cardiologist allows him to
JEREMY BACON has some urinary problems after his HIFU (High Intensity Focused Ultrasound) but his ED issue no longer requires Cialis
DEL MANCUSO six months after IMRT (Intensity Modulated Radiation Therapy) with adjuvant ADT (Androgen Deprivation Therapy) his PSA is 0.30 ng/ml
JAMES WEIDENER PSA still falling 21 months after HDR (High Dose Radiation Brachytherapy) some slight ED fixed with daily Cialis
JOHN P has decided on RALP (Robotic Assisted Laparoscopic Surgery) at City of Hope
JIM WILSON has decided on RP (Radical Prostatectomy) as his best course
BOB DAVID 30 months after RP (Radical Prostatectomy) he says everything is better than he thought it would be no incontinence and ED a thing of the past
BARRY LITCHFIELD has been watching his PSA rise for ten years but will not have a biopsy despite a PSA of 45.0 ng/ml
JOHN FARROW still battling eye problems on his trial after failed EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy) but at least his PSA is low still
ALLEN Z Silver member has a creeping upward movement of PSA five years after failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Therapy)
TOM ALLEN Silver member has had a good result from his PBT (Proton Beam Therapy)
TERRY FEE second undetectable PSA after his RP (Radical Prostatectomy)
AMADOR MONTEJANO is concerned that his Chemotherapy is failing with his PSA rising
That brings me up to submissions that came in yesterday Monday August 23 my time) If you have submitted your story or an update and it has not appeared on the site or I have not acknowledged it, please e-mail me at terryherbert42@gmail.com
