Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

This forum is for the discussion of anything to do with Prostate Cancer.
There are only four rules:

  • No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
  • No harvesting e-mail addresses for Spam;
  • No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
  • Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making

Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

Since this is an International Forum, please specify your location in your post.

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New Entries and Updates

NEW POSTS:
KERN LEWIS chose HDR – (High Dosage Radiation Therapy) and has had his first dose with one to come

JOHN P has chosen RALP (Robotic Assisted Laparoscopic Surgery) with Kawachi at City of Hope

MIKE DAVIS newly diagnosed and undecided

BUD E diagnosed in June and chose RP – going in this week

STEVEN PINCOTT chose RALP (Robotic Assisted Laparoscopic Surgery)

PATRICK T newly diagnosed and undecided – leaning towards Brachytherapy

LARRY HELBER diagnosed with GS 9 disease despite a low PSA of 1.6 has chosen RALP (Robotic Assisted Laparoscopic Prostatectomy) with neo adjuvant ADT (Androgen Deprivation Therapy) plus IMRT (Intensity Modulated Radiation Therapy)

MARIAN GRZELAK is in Poland and was recently diagnosed with a PSA of over 3,000 ng/ml and staged T4 he needs help urgently but bear in mind that drugs available in US and UK may not be available in Poland

RICHARD UKMAN comes in as a Gold member and gives a blow by blow description of his salvage Cryotherapy after failed EBRT (External Beam Radiation Treatment) with neo-adjuvant ADT (Androgen Deprivation Therapy) which he had in 1999

STEVE C diagnosed in June and chose RALP (Robotic Assisted Laparoscopic Prostatectomy)

HANK HANCOCK chose RALP (Robotic Assisted Laparoscopic Surgery) but is concerned about detectable PSA less than three months after procedure


UPDATES FROM MEMBERS
FRANK FAZZINA after his failed RALP (Robotic Assisted Laparoscopic Prostatectomy) he is on ADT (Androgen Deprivation Therapy) and EBRT (External Beam Radiation Therapy) and consulting Dr Myers for diet and supplements

DAVE WOJTA his first choice of RALP (Robotic Assisted Laparoscopic Prostatectomy) is not recommened so he is investigating EBRT (External Beam Radiation Therapy)

RIP SMITH had RALP (Robotic Assisted Laparoscopic Prostatectomy) in December 2009 and is very frustrated by ED issues – looking for help

AMADOR MONTEJANO is concerned that his chemotherapy is failing

JOHN HEIGHTS two years after RALP (Robotic Assisted Laparoscopic Surgery) has slight incontinence and ED

GREG KAMPA has almost completed his PBT (Proton Beam Therapy) at Loma Linda and, as is mostly the case, enjoyed the process

TIM BARBER undetectable PSA one year after his GS 10/T4 diagnosis treated with RALP (Robotic Assisted Laparoscopic Prostatectomy), EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy)

KEITH TWEED still thoroughly examining all his options

ANIL NATHANEY has completed his EBRT (External Beam Radiation Therapy) with good results

ANGELO CIFELLI PSA is 0.20 12 months after PBT (Proton Beam Therapy) at Jacksonville

STEPHEN DUGDALE still looking at his options and being urged to treatment

GLENN C undetectable PSA three years after RALP (Robotic Assisted Laparoscopic Surgery) but had both incontinence and ED so he decided to fit the mechanical devices to help him – like Dino Brown, he had some problems

DAN BRYANT four years after RALP (Robotic Assisted Laparoscopic Prostatectomy) has recovered erectile facilities and has miniscule leakage

FRANK MASLEN Silver member now on adjuvant ADT (Androgen Deprivation Therapy) prior to EBRT (External Beam Radiation Therapy) after failed RP (Radical Prostatectomy) seven years ago

BRIAN MARSHALL diagnosed with a PSA of over 900 and a T4 staging he had a survival prognosis of 6 months, with ADT (Androgen Deprivation Therapy) he is still with us three and a half years later

DAVID WALLSLY one month after RALP (Robotic Assisted Laparoscopic Prostatectomy) everything’s normal except for ED

RICHARD TRAISTER has completed the first two weeks of his IMRT (Intensity Modulated Radiation Therapy)

BOB KAHN frustrated by the lack of good information and certainty – is considering Brachytherapy

REINHARD POLLER three years after PBT (Proton Beam Therapy) he has had a slight bump in his PSA

CHRIS BUTTERISS Gold member has started his ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy) carried out in 2000 – current PSA is 166.0

TERRY HERBERT PSA down from 8.2 to 2.3 ten weeks after the first Zoladex shot in the current ‘on’ cycle of his ADT (Androgen Deprivation Therapy)

DAVID N three weeks after his RP (Radical Prostatectomy) his path report confirms GS 9 biopsy diagnosis and he starts ADT (Androgen Deprivation Therapy) soon

JEFF FRANZEN still not sure of what best to do in the face of a rising PSA after RP (Radical Prostatectomy) in 2007

GARY C has let his exercise and diet regimen slip while on Active Surveillance – PSA up 1.0 ng/ml and another biopsy


I am now up to date with all entries that I have received. There appear to be some problems with Spam filters again. If you have submitted your story or an update and it has not appeared on the site or I have not acknowledged it, please e-mail me at terryherbert42@gmail.com

All the best

Terry in Australia

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