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BARRY WHIP chose PBT (Proton Beam Therapy) at Okalahoma City
NEAL D scheduled for RALP (Robotic Assisted Laparoscopic Prostatectomy) next week – July 20
UPDATES FROM MEMBERS HARV V stays on his Active Surveillance choice and reflects on what a difference a year makes in treatment choices
TOM HERRICK two years after his RALP (Robotic Assisted Laparoscopic Prostatectomy) he only has small leakage and an implant has fixed his ED
JIM MULCAHY newly Gold Member regrets ten years after failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Therapy)that he didn’t have a urinary sphincter fitted earlier
LARRY LUITJENS Silver Member who chose IMRT (Intensity Modulated Radiation Therapy) after a spell of Watchful Waiting is happy with his choice despite ED issues.
JOHN SNEAD has had RP (Radical Prostatectomy) performed by Dr Walsh at Johns Hopkins
REX BAKALL having some hot flushes with his ADT (Androgen Deprivation Therapy)
WALTER R progressing normally after RALP (Robotic Assisted Laparoscopic Prostatectomy)
DAVE CURTIS two and a half years after his RALP(Robotic Assisted Laparoscopic Prostatectomy) he has decided to have an implant for his ED
JOE MAC having a very rough time two years plus after his EBRT (External Beam Radiation Therapy) with radiation damage
PAUL JOHNSON after failed RALP (Robotic Assisted Laparoscopic Prostatectomy) EBRT (External Beam Radiation Therapy) with ADT (Androgen Deprivation Therapy) he is more concerned about his 0.80 PSA than his oncologist is
MARK N two years after (Robotic Assisted Laparoscopic Surgery) he feels that he has lost no "manhood points" through this
RICK DANCER chose EBRT (External Beam Radiation Treatment) – Calypso ® and is happy with things to date
LARRY CARL has had to come off his ADT (Androgen Deprivation Therapy) ‘holiday’ after failed RP (Radical Prostatectomy)and he’s not happy about that
PAUL M eight months into his Active Surveillance, his PSA has dropped satisfactorily
HUGH J twelve months after his diagnosis he is happy with his choice of RP (Radical Prostatectomy) and has 90% of his pre-op erectile function
REG BOSLEY has now found that his initial PSA was 1,400.0 ng/ml and his GS was 9 is on ADT (Androgen Deprivation Therapy)
AMADOR MONTEJANO still on chemotherapy which has eased his pain somewhat
JW BURFORD has finally shaken off his ADT (Androgen Deprivation Therapy) side effects, but still has ED and leakage issues from his failed RALP (Robotic Assisted Laparoscopic Surgery) and EBRT (External Beam Radiation Treatment)
DANNY EVANS a year away from hitting Gold Status his experience highlights some of the differences in treatment in Australia compared to the US for a rising PSA after RP (Radical Prostatectomy)
DAVE C chose PBT (Proton Beam Therapy) and joined the hypofractionated dose trial at Loma Linda and has proctitis and possible development of ED
DENIS KLOSKE recovering from RP (Radical Prostatectomy) in May
ED JULIUS positive feedback two years after RALP (Robotic Assisted Laparoscopic Prostatectomy) followed by EBRT (External Beam Radiation Therapy) and Chemotherapy for a GS 5+4=9 tumour
JOHN LERCH also diagnosed with a GS 9 tumour and after RP (Radical Prostatectomy) followed by EBRT (External Beam Radiation Therapy) and ADT3 (Androgen Deprivation Therapy) under Dr Myers
DAVE H spent so much time trying to make up his mind that he has almost by default entered an Active Surveillance regimen
RUSS SUERETH Gold Member still on holiday from intermittent ADT (Androgen Deprivation Therapy) after failed RP (Radical Prostatectomy) nine years ago
JOHN BARNA-LLOYD Platinum Member – diagnosed in 1993 – had two failed Cryotherapy procedures before opting for PBT (Proton Beam Therapy) at Loma Linda
GEOFFREY COTTERMAN still incontinent and with ED problems one year after RALP (Robotic Assisted Laparoscopic Prostatectomy)
HOWARD RICHMOND Silver member – some ED issues after his RP (Radical Prostatectomy)
JEREMY F has about beaten his ED issues after his RP (Radical Prostatectomy)
RON D three years after RALP (Robotic Assisted Laparoscopic Surgery) has Ed and some leakage
BILL ELLIOT Silver member still battling ED issues and some incontinence after RALP (Robotic Assisted Laparoscopic Surgery) in 2004
WOLF U still with some urinary and ED issues after his RALP (Robotic Assisted Laparoscopic Surgery)
JOHN PEARCE Gold member in his 10th year after RP (Radical Prostatectomy) ED is there but not an issue
BILL R diagnosed in 2006 with a PSA of 135 ng/ml and a T4 stage disease he chose EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy) – currently on ADT vacation with rapidly rising PSA
PETER DUNNING still happy with his choice of Active Surveillance
RICHARD COLEMAN PSA still dropping and no side effects after PBT (Proton Beam Therapy) at MD Anderson
SADEQ SADEQ ask for some advice on his current ADT (Androgen Deprivation Therapy) protocol
JOE HODGE has just had his 14th ‘undetectable’ PSA after his RP (Radical Prostatectomy) five years ago – as he says there’s always a bit of anxiety while waiting for the result!
DAVE WOTJA still discussing EBRT (External Beam Radiation Therapy), seemingly as an adjunct to RALP (Robotic Assisted Laparoscopic Prostatectomy)
I am now up to date with all entries that I have received. There appear to be some problems with Spam filters again. If you have submitted your story or an update and it has not appeared on the site or I have not acknowledged it, please e-mail me at terryherbert42@gmail.com
