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MARK GREENE diagnosed earlier this month and choosing RP (Radical Prostatectomy) he is the first member to report a Gleason Score based on a tertiary focus which sees a 3+4=7 score move to 3+4+5=8
GEOFF TISCH originally chose RP (Radical Prostatectomy) but switched to Active Surveillance
REG BOSLEY recently diagnosed with metastasised disease and in a state of shock
MIGUEL R decided on RALP (Robotic Assisted Laparoscopic Prostatectomy) and has some ED issues
SADEQ S diagnosed January 2009 with GS 10 tumour and on ADT (Androgen Deprivation Therapy)
DE WAYNE CHARLESTON diagnosed with PSA 80/GS 8 tumour in September 2009 and on ADT (Androgen Deprivation Therapy)
UPDATES FROM MEMBERS
PETE APPLE three years plus after his RP (Radical Prostatectomy) he mentions a ‘rise’ in his PSA from 0.006 to 0.008
RUSS D Silver Member celebrates his fifth year with undetectable PSA after EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy)
LEO CROWLEY five months after Brachytherapy his PSA is reducing but has some urinary and ED issues
THOMAS REED one year after his PBT (Proton Beam Therapy) all’s going well – some proctitis detected but no symptoms
JEFF FRANZEN although he had a PSA rising to 7.0 ng/ml after his RP (Radical Prostatectomy) in 2007 he declined ADT (Androgen Deprivation Therapy) and no longer measures his PSA
RICHARD VANCE is determined to have PBT (Proton Beam Therapy) at MD Anderson, but his insurers have other ideas
STUART CRAWFORD a little concerned about a rise in PSA to 0.18 aftwr RP (Radical Prostatectomy) and EBRT (External Beam Radiation Therapy)
RICHARD LEE after failed RALP (Robotic Assisted Laparoscopic Prostatectomy) at age 74 he has started on ADT (Androgen Deprivation Therapy) and will start EBRT (External Beam Radiation Therapy) in July
GREG B four years diagnosis and failed RALP (Robotic Assisted Laparoscopic Surgery) followed by EBRT (External Beam Radiation Treatment) his PSA is still undetectable and the prosthesis implanted has dealt with his ED problem
JACK RATHERT after EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy) he has some Ed and leakage issues
STEVEN SNYDER had surgery and implant to deal with both persistent incontinence and ED after his RALP (Robotic Assisted Laparoscopic Prostatectomy)
RICHARD SMITH Silver Member - nine years after diagnosis, with a rising PSA a third biopsy does not provide any evidence to sway him form his Active Surveillance decision
ROBERT S four years after RP (Radical Prostatectomy) no PSA: no problems
DAN LOCK Silver member now on Chemotherapy after failed RP (Radical Prostatectomy), EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy)
CHARLIE DAVIS Silver member with a PSA still heading down three years after ProstaScint® procedure but has ED
JOHN THOMPSON chose Brachytherapy with IMRT (Intensity Modulated Radiation Therapy) and adjuvant ADT (Androgen Deprivation Therapy) and is happy with his choice – no side effects and an undetectable PSA
MARC JORDAN ten months after RP (Radical Prostatectomy) he was still having ED problems but trimix has helped
LLOYD L still on Watchful Waiting despite an increase in PSA
STEVE JENNINGS PSA undetectable one year after RALP (Robotic Assisted Laparoscopic Prostatectomy) ED issues satisfactory
HARV V stays on his Active Surveillance choice and reflects on what a difference a year makes in treatment choices
I am now up to date with all entries that I have received. There appear to be some problems with Spam filters again. If you have submitted your story or an update and it has not appeared on the site or I have not acknowledged it, please e-mail me at terryherbert42@gmail.com
