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Dyan, my heart goes out to you and your father-in-law reading this story.
At the very least this story should be a clarion call for ALL of us to get copies of ALL of our tests and medical visits.
When I found the YANA site, I read of the importance of getting copies, but I didn't take it to heart and did not get a copy of my biopsy results showing prostate cancer last fall. I wanted some more info, so called and almost had a falling out with my urologist when I was told, "That's way more than you need to know". Luckily in my case nothing was hidden; and when confronted, the urologist took it well, and has been very supportive, and has copies of all tests waiting for me since.
You are quite right to be angry, sad, mad. What happened to your father-in-law Normand is inexcusable and would, I think, be very good grounds for legal action against the doctor who simply failed in his duty. In these days when men have biopsy procedures for PSA levels below 4.0 ng/ml it is just unthinkable for a PSA of over 100 ng/ml to be ignored.
A PSA level of that magnitude could have been causd by BPH or infection. That is true, but to simply assume that this is so, to fail to run further tests, to fail to biopsy is, in my opinion absolutely inexcusable.
Having said that, as Joe says, don't let that shift your focus away from providing all the help you can.
It seems that it is likely that Normand has metastasized disease - the aggressive nature of the Gleason Score of 9 and the 'bad news' of the latest CT scan seem to portend that. This does nt mena that all is lost, but it does mean that expert help is required, and a good oncologist is the person to consult. They are expert in dealing with cancers.
Can I also suggest you join Advanced Prostate Cancer Group . There are many men and women there with years of experience in dealing with the issues faced by men with advanced disease and I feel sure you will get help from them.
Thank you for listening and responding. We live in New Hampshire and we are seeing a radiation oncologist now. Normand will need to see a medical oncologist in the very near future.
Today I took him to f/u with the radiation oncologist for the result of the chest CT scan. Just as we thought they found area of concern in the right upper lobe and the left upper lobe. So at this time radiation beam to the prostate is not an option.
The oncologist feels that it may be 2 seperate cancers. He thinks the lung is a primary cancer. On Tuesday 6/29 Normand will have a lung biopsy and that Friday we will learn more. It looks like chemotherapy is the only way to go. He will continue the elegard injections every 3 months.
I am staying optomistic for him. It is just a shame we didn't know about the PSA 2 years ago. I believe things would have been a little better.
Thanks for your thoughts on this. Terry, thank you for the website i will join them.
Hi Jennie, I am so sorry that your husband had a bad experience too. I am a nurse and I know doctors are not god. I know not everyone can be saved and sometimes it's just our time. But, this is just wrong not following through. Not telling the patient important information that could ultimatley save his life or give him more time. I don't want anything from this doctor. I just don't want this to happen. I use to hear about these things. This day in age this stuff shouldn't go on. In my mind there is no excuse.
