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ANDY RIPLEY has passed on just five years after diagnosis with a very aggressive form of the disease that saw his PSA soar to over 7,000 ng/ml before a metastasis robbed him of his sight
NEW POSTS:
THOMAS HEHIR diagnosed in 2009 he chose AS (Active Surveillance) – follow up biopsy found no cancer cells
IAN LINDSAY after ADT (Androgen Deprivation Therapy) he decided on RALP (Robotic Assisted Laparoscopic Prostatectomy)
PETER TURNER comes in as a Platinum member, having been diagnosed in 1994 when he had EBRT (External Beam Radiation Treatment) some results of which only manifested themselves recently
CHRIS BUTTERISS comes in as a Gold member having been diagnosed in 2000 - due to re-start ADT (Androgen Deprivation Therapy) after failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Treatment)
UPDATES FROM MEMBERS
DAN HARRIMAN decided on RP (Radical Prostatectomy) and is now recovering from June 7 surgery
ROB SIMON hits Silver status and reports no problems after PBT (Proton Beam Therapy) apart from some minor bowel issues last year
HUGH ARMITAGE reflects on the events of the past year since he had his PBT (Proton Beam Therapy) and finds some positives in a prostate cancer diagnosis
ALAN J on ADT (Androgen Deprivation Therapy) holiday with PSA below 0.10 with no side effects after IMRT (Intensity Modulated Radiation Therapy) for a GS9/PSA 76 diagnosis
ROBERT WALLACE chose Brachytherapy with adjuvant ADT and still has some urinary tract issues
AMADOR MONTEJANO started chemotherapy and started having side effects on day 3 – his PSA is rising faster
CHRISTOPHER IVY two years after diagnosis and after two subsequent negative biopsy procedures his doctor is happy to support continued Active Surveillance
ROBERT PARSONS old timers may recall Robert’s posts as ‘Proton Bob’. Diagnosed 8 years ago with PSA 46 and GS 9 he had failed IMRT (Intensity-Modulated Radiation Therapy) and ADT (Androgen Deprivation Therapy) before choosing DES (diethylstilboestrol) which he says has worked very well
PATRICK MORAN two years after RALP (Robotic Assisted Laparoscopic Surgery) he gives a full description of his ED problems, now mainly resolved although it seems he has Peyronie’s Disease
JB W earlier updates went missing in cyberspace, so there is a fair bit of catch up as he chooses surgery for failed Brachytherapy and ADT (Androgen Deprivation Therapy) and demonstrates why second opinions should be sought and why you should get copies of all medical reports.
KEVIN SALTER undergoing EBRT (External Beam Radiation Therapy) for failed RP (Radical Prostatectomy)
MARKKU LEITSO celebrates his first year on ADT (Androgen Deprivation Therapy) after a GS 8, T4 PSA 286.0 diagnosis with the news that his CAT scan show ed some retreat of his metastasised disease
DAVID WHITEHOUSE another man concerned about a rise in PSA from undetectable to 0.10 ng/ml after RALP (Robotic Assisted Laparoscopic Surgery) – has there been a change in PSA reporting?
JOHN SNEAD has decided on RP (Radical Prostatectomy) with Walsh at Johns Hopkins
KLAUS VON HAGEN still on ADT (Androgen Deprivation Therapy) for failed Brachytherapy and still worried
DEAN BUCK still very happy with his choice of PBT (Proton Beam Therapy) at Jacksonville
MIKE P still has a PSA of 0.41 after HIFU (High Intensity Focused Ultrasound) but has been diagnosed with Parkinson’s disease.
FRANK LEONARD still battling ED issues after RALP (Robotic Assisted Laparoscopic Surgery) but incontinence is only slight
RON T PSA stable and low after successful HIFU (High Intensity Focused Ultrasound).
DAVID BASHOVER Silver member wh has been through the mill – RP (Radical Prostatectomy), ADT (Androgen Deprivation Therapy) and EBRT (External Beam Radiation Therapy)
SCOTT ANDERSON a tad over two years after RALP (Robotic Assisted Laparoscopic Surgery) his ED problems are slight
I am now up to date with all entries that I have received. There appear to be some problems with Spam filters again. If you have submitted your story or an update and it has not appeared on the site or I have not acknowledged it, please e-mail me at terryherbert42@gmail.com
