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Well, things are back to normal after our great vacation/holiday in the USofA .
The future of the Yana site looks more secure. Darry Mitteldorf who runs the Malecare site has been very helpful and I think I will be able to construct a new site that will work better than the present site – without losing the value of the site – over the next months (or maybe years!!). We’ll see.
For the moment things will go on as usual – and here are the new members and updates, some of which were waiting for me when I got back. There is also the sad news of the passing of Geoff H.
SAD NEWS
GEOFF H sadly Geoff passed on after battling a Gleason 8 Stage T4 disease
NEW POSTS:
PHIL FAN chose PBT (Proton Beam Therapy) at Jacksonville for his Gleason 9 tumour – happy with the outcome
BILL D decided on RALP (Robotic Assisted Laparoscopic Surgery)
WARWICK FORD despite a low PSA of 3.0 was diagnosed with GS 9 tumour and has chosen the full array of ADT (Androgen Deprivation Therapy), Brachytherapy and EBRT (External Beam Radiation Therapy)
BRIAN WATTS decided on Brachytherapy when diagnosed in October 2006, but changed to Active Surveillance
JON NOWLIN diagnosed in 2006 and has been following a detailed Active Surveillance protocol since then in line with the maxim “The overall approach I believe in is doing the Minimal Intervention that the patient feels comfortable about combined with the Maximum Surveillance that medical science allows.” Dr Israel Barken 2 January 2002
TOM KEATING newly diagnosed – will have saturation biopsy to see if focal cryotherapy or HIFU (High Intensity Focused Ultrasound) are options
UPDATES FROM MEMBERS
TOM C celebrated his two year after diagnosis with a 0.30 ng/ml PSA after Brachytherapy
BOB DR PSA down again after PBT (Proton Beam Therapy) – some slight bowel urgency
STEVE Z his PSA seems to have stabilised after failed Focal Cryotherapy
RICK GOINS PSA down to 0.93 after his IMRT (Intensity Modulated Radiation Therapy) EBRT (External Beam Radiation Therapy)
BARRY CURTIS Silver member who chose RP (Radical Prostatectomy) and is happy with his outcome after EBRT (External Beam Radiation Therapy) for failed surgery
PRADEEP RAJ his latest chemotherapy has failed and he is weakening
HENRY CRAWFORD Silver member who chose RALP (Robotic Assisted Laparoscopic Surgery) when diagnosed five years ago and all is well, with some ED issues still unresolved
ERIC TAYLOR Gold member who chose RP (Radical Prostatectomy) when diagnosed in 2000 was a bit concerned about rising PSA, but not too concerned as to stop another trip into the Outback with his caravan
GREG KAMPA has decided on PBT (Proton Beam Therapy) but is now arguing with his insurers
JEREMY BACON has retrograde ejaculation and some urinary issues after his HIFU (High Intensity Focused Ultrasound).
JOHN LEMLEY continues on Active Surveillance with a reduction in PSA level
CHARLES BLAKELY no change since last PSA test – still some ED issues after RALP (Robotic Assisted Laparoscopic Surgery)
DOUG G diagnosed at 49 he is comfortable with his AS (Active Surveillance) decision at present
RONNIE MILLER nine months after RALP (Robotic Assisted Laparoscopic Surgery) continence is OK, PSA is undetectable, but ED problems persist
ROB MACROB Silver member whose GS 9 and PSA of 252.0 ng/ml at diagnosis six years ago resulted in dire predictions is back on ADT (Androgen Deprivation Therapy) after having had a ‘holiday’ from his therapy
BILL T four years after his RALP (Robotic Assisted Laparoscopic Surgery) everything’s going well – uses a bit of help at times for the ED
CHUCK GEIGER chose RALP (Robotic Assisted Laparoscopic Surgery) and after four years has undetectable PSA and ED
JOHAN MEYER goes to Silver status five years after his RP (Radical Prostatectomy) with no serious side effects but a positive focus on life
ROY WHITE diagnosed in 2008 with a PSA of 7,000 ng/ml and a GS 10 tumour, his PSA is rising showing that his ADT (Androgen Deprivation Therapy) has begun to fail – looking to get on a trial
TOMAS BERGMAN couldn’t be happier as he comes towards the end of his PBT (Proton Beam Therapy) in Jacksonville
DON PEARSON eighteen months after his RALP (Robotic Assisted Laparoscopic Surgery) and he has no complaints – ED is dealt with by VED and Viagra
