Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

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Re: Di VInci Surgery scheduled

Wilbert,

Yes, you are moving too fast. Yes, your PC may be spreading, but likely not so fast that you cannot take the time to understand the outcomes.

On April 18 I got the results of my PSA. On May 14 I had my biopsy. On July 7 I had my surgery. I moved too fast.

I now believe that you should not be hoping that or counting on the experience of your doctor to somehow beat the numbers. Already now, even before surgery, you should be planning on how you will deal with ED. It is easy and reasonable to say, "get the cancer out, we'll deal with the rest as it comes." It is wonderful that you have a supportive spouse. So do I. But I will tell you, ED hits you harder than you even now can fathom. I'm cancer free since the surgery--and there are days that I want my prostate back, even diseased, I want it back. The absolute frustration of ED is a daily thing. The depression that comes with ED is real.

You're running on fear. We hear "Cancer" and it ramps us up like few things can. I know, I had a front seat on fear's roller coaster ride.

My doctor was great, one of the most experienced in the area, working out of one of the best facilities in the area. Both nerve bundles were spared. Surgery was uneventful, recovery was uneventful. I am no longer in diapers, pads are still a once and awhile safety net. While mostly continent, I think about, plan, and leave allowance for peeing every day. I can't drink a glass of water without taking into account when or where I will be when I have to pay the price.

Wilbert, it is not if you will be incontinent, but for how long and to what degree you will get something back that you can count as control? There will be a new "normal"--what can you live with. It is not if you will have ED, but what is your, and your doctor's plan to deal with ED?

Wilbert, you ask if you're moving to fast, guys have been giving you great answers, but it doesn't sound like you are listening when they say "yes, you are." I understand. I didn't want to hear either. I wanted guys to say, "no, run and get your operation," and when they didn't agree with me, I didn't listen either.

Read my entry on the experience page. I am more like your experience than not. Had I to do it all over again, I would rather deal with the diet and testing regimen of active surveillance than what I am dealing with now.

Stop, slow down, listen.

Peace,

ScotK

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