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When Bob got diagnosed in Jan of 2008, they put him on Casodex and Lupon injections plus an IV drip for his bones which I can't remember. His psa went down, then started to rise. His oncologist wasn't changing up any medicines and we both got the feeling he just didn't care. So we switched docs and go to UW .. they put him on Nilandron, and give him Zolodex injections in his tummy every 3 months and took him off the IV monthly drip. His psa went down, but then started to rise. I took him to the Mayo clinic in MN (we live in WA) and they took him off all the meds and put him on Flutimide (heavy dosage), well his psa tripled. So we went back to the doc at UW, where they have him now on Ketaconzole 3x daily, 1 prednisone and Adovart, Flomax and the Zolodex injection every 3 months. I did switch out his diet, as soon as we got the news about his cancer, where he eats absolutely no dairy or dairy cow. It seemed like the lymph nodes and prostate started getting better. I am hoping to move him to Northern CA where it won't be so damp for his injured bones and hopefully a little less pain free, but we'll see what his oncolgist says tommorrow.
I'm sorry for the long reply! Take good care, Renee
Nae:
First of all, the scan that showed resolution of metastases is superb. Stable psa at any level is also excellent. That is some very good news. Other drugs before chemo include Leukine injections, estrogen and its analogues, thalidomide or its brand Revlimid. There are others so keep the faith. He has already surpassed the doctor's prediction, so THERE!
I didn't get a chance to read your email JohnC, until we came back from the oncologist. His advice was simply stay on the meds Bob is on because as you put it, a stable psa is an excellent psa. Thank you, it just put the biggest grin on my face after weeks, months, years of stress.
So we will see the doc again in May unless Bob's psa triples or something, his oncologist does want him to have a bone marrow... any thoughts on that? I had one for my leukemia and it was so painful, but I don't have the "bad kind" apparently.
I keep you all in my prayers and stay strong....even if it means being angry... or wait is it: even if it means never having to say you're sorry ... allright, I'm old and confused.
xoxoxoxox Nae
Have you looked into DES, emcyt, or estradiol patches, they can work on hrpca's on most patients, how long is next question. I believe my stats were maybe worse than your husbands, it has been 8 yrs. since diagnosis and currently doing well-well, subject to change anytime of course. DES has helped me and beat ADT3 big time as to results, effects, I did ADT3 for 2 yrs., read my story in mentors section under radiations (Rob Parsons, Michigan)
