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I have kept the MINI POLL open for a while longer for men who have had surgery or are thinking about it. The poll concerns the ‘minor side effects of surgery – Climacturia, Peyronies and loss of size - and what men who chose surgery knew about these. The answers so far show that very few men were told about them, many men suffer from them, but the large majority would have chosen surgery even if they knew about these side effects
NEW POSTS:
DAVE H is undecided but will make a decision after a second biopsy later in the year
MIKE KLEIDERMACHER diagnosed in 2007 and chose Active Surveillance – is developing some ED problems
EDGARDO POTES chose RALP (Robotic Assisted Laparoscopic Prostatectomy) and is now waiting to see the results
MICHAEL SHANNON starts EBRT (External Beam Radiation Therapy) shortly after PSA of 0.09 four years after RP (Radical Prostatectomy)
E T K newly diagnosed and leaning towards surgery but wonder if he’ll shout “STOP!” on the operating table
UPDATES FROM MEMBERS
BOB SAFEWAY diagnosed two years ago with a GS 9 PSA 140+ T4 tumour his wife puts his continued wellbeing to a change in diet
JOHN FARROW Silver member diagnosed in 2002 with GS 8 tumour has a good reaction to Abiraterone Trial after failed EBRT (External Beam Radiation Treatment)
DAVID LYNCH makes Gold membership after ten years following failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Treatment)
RONNIE CASSELL expresses strong opinions on the ACS Guidelines – still has incontinence and ED problems after RP (Radical Prostatectomy) ADT (Androgen Deprivation Therapy)
BEN PARROTT PSA continues to drop, bowel and bladder issues continue to improve after Brachytherapy
BOB STEWART another new Gold member, ten years after his EBRT (External Beam Radiation Therapy) with adjuvant ADT (Androgen Deprivation Therapy)
ERNEST FRANK yet another new Gold member - has developed radiation proctitis after EBRT (External Beam Radiation Treatment) with ADT (Androgen Deprivation Therapy) following failed Watchful Waiting
GREG STERN happy with his choice of Calypso® IMRT (Intensity Modulated Radiation Therapy) but not entirely happy with aspects of his sex life
ROBERT WALLACE still wearing his lead shorts four weeks after his Brachytherapy
MARTY D not happy about his RALP (Robotic Assisted Laparoscopic Surgery)
BILL KLUNGLE cancelled his planned surgery after a second opinion and chose Active Surveillance with reviews using Color Doppler
STU HYATT three star Gold member had a failed RP (Radical Prostatectomy) in 1997 – has a gradually rising PSA to deal with
BARRY SCHNEIDER reports his PSA after his EBRT (External Beam Radiation Treatment)
PETE APPLE happy to have an undetectable PSA on the third anniversary of his RP (Radical Prostatectomy) for his GS 9 tumour
DENNIS LEHMAN ten months after his RALP (Robotic Assisted Laparoscopic Surgery) his incontinence is very little problem and his ED is improving
TONY SHORES very happy to have an undetectable PSA 8 months after taking and ADT (Androgen Deprivation Therapy) holiday after his EBRT (External Beam Radiation Treatment) – after being diagnosed with a 98.8 PSA
DOUG G was thinking of RALP (Robotic Assisted Laparoscopic Surgery) but has switched to Active Surveillance
TONY JUPP makes his Silver membership and reports that six years after his MLP (Manual Laparoscopic Surgery) he has some slight incontinence issues, including bowel, and some ED
FRANK P has concluded his CyberKnife® therapy with no overt problems
JAMES WEIDENER fifteen months after HDR – (High Dosage Radiation Therapy) he’s happy with the result
MIKE C returned from a trip to Australia and New Zealand (and dinner with me!) to an undetectable PSA 15 months after RALP (Robotic Assisted Laparoscopic Surgery)
SHARAF ALI BOHRA hits Silver status after RP (Radical Prostatectomy) and Orchidectomy in lieu of ADT (Androgen Deprivation Therapy).
MIKE KEITH four years after PBT (Proton Beam Therapy) some minor rectal bleeding (radiation proctitis)
DON KERSH got a star to add to his Gold membership as he enters his eleventh year fro diagnosis. Does not regret his choice of RP (Radical Prostatectomy)
WILLIAM C fifteen months after EBRT (External Beam Radiation Treatment) and adjuvant ADT (Androgen Deprivation Therapy) he has ED but a low PSA He also gives a bit of information about YANA
BOB HOFFMAN two years after RP (Radical Prostatectomy) still some ED problems
RICHARD M with a PSA don to 0.17 after his PBT (Proton Beam Therapy) he considers himself cured, but is still healing
TERRY CROOK recovering well from his December 2009 RALP (Robotic Assisted Laparoscopic Surgery) but battling with ED
STEPHEN FLETCHER three years after RALP (Robotic Assisted Laparoscopic Surgery) he still needs help with erections
MICHAEL HEARD developed bladder cancer after EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy)
