Prostate Cancer Survivors

 

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

This forum is for the discussion of anything to do with Prostate Cancer.
There are only four rules:

  • No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
  • No harvesting e-mail addresses for Spam;
  • No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
  • Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making

Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

Since this is an International Forum, please specify your location in your post.

General Forum
Start a New Topic 
Author
Comment
New Mini Poll: New Posts and Updates

Monday, 8 March 2010

My apologies for the delays in getting these new entries and updates – I’m up to last Wednesday now and hope to catch up in the next two or three days. I have also set up a new Mini Poll for men who had surgery or who are going to have surgery.

NEW MINI POLL

This MINI POLL, which will have no scientific value even when complete is intended to get some idea of how many men who have had surgery – RP (Radical Prostatectomy) or RALP (Robotic Assisted Laparoscopic Surgery) – were told about the so-called ‘minor’ potential side effects of Climacturia, Peyronies Disease or the loss of size


NEW POSTS:

GREG E newly diagnosed and has decided on RALP (Robotic Assisted Laparoscopic Surgery) – set for March 24

WALTER R diagnosed October 2009 and had RALP (Robotic Assisted Laparoscopic Surgery) earlier this month

PETE CARSON diagnosed in 2002, so he comes in as a Silver member he is on intermittent ADT (Androgen Deprivation Therapy) after EBRT (External Beam Radiation Treatment) at a PSA level that probably would not be acceptable in the US

PAUL TWEEDY recently diagnosed and undecided but leaning towards at RALP (Robotic Assisted Laparoscopic Prostatectomy)

TIM CLINE has chosen RALP (Robotic Assisted Laparoscopic Surgery) but is looking into other options

TOM LANCASTER shows why it is important to get a second opinion – his initial diagnosis of T1/GS 7 changed to T4/GS9 after seeking a second opinion from a centre of excellence which treated him with neoadjuvant ADT (Androgen Deprivation Therapy) and EBRT (External Beam Radiation Treatment)

DENNIS CUNNINGHAM newly diagnosed and undecided – cannot seem to get good advice from his doctors


UPDATES FROM MEMBERS

DAVID MUNOZ six weeks after his Brachytherapy his urination problems are almost over and his ED issues start being resolved

JOSE OCHOA two and some years after RALP (Robotic Assisted Laparoscopic Surgery) and no problems

MEL PANTHERSFAN nine months after completion of his PBT (Proton Beam Therapy) there is an increase in his PSA

RICK OTEY makes Silver status five years after diagnosis and PBT (Proton Beam Therapy)

RONNIE MILLER six months after RALP (Robotic Assisted Laparoscopic Surgery) he has what he terms “the usual incontinence and ED” issues

LEN AIREY newly Silver member seems to have put the stricture problems that developed from his RP (Radical Prostatectomy) behind him

BILL JORDAN finishes off the story of his erectile implant

RICHARD H has had some bad news about a lesion on his rib, broken in a motor cycle accident – is both depressed and angry

FRANK P reports on his initial CyberKnife® treatment

PAUL A describes his efforts to deal with ED he has after EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy) following a ‘medical mishap’ during RALP (Robotic Assisted Laparoscopic Surgery)

DENNIS DENNIS six months after IMRT (Intensity Modulated Radiation Therapy) his PSA is still falling, but has some signs of ED

STAN M PSA undetectable after RALP (Robotic Assisted Laparoscopic Surgery) with some ED and incontinence

ALEXANDER MCKENZIE gets a star to go with his Gold status this year, eleven years after his combined HDR – (High Dosage Radiation Therapy) and EBRT (External Beam Radiation Treatment) with a rising PSA and a move to ADT (Androgen Deprivation Therapy)

AMADOR MONTEJANO ADT (Androgen Deprivation Therapy) has failed to keep his PSA down below 10.0 ng/ml after a T4 GS 8 PSA 98 diagnosis and his doctor is pushing a Chemotherapy trial as soon as possible

TOM DILLON reporting in two years after his RALP (Robotic Assisted Laparoscopic Surgery) – undetectable PSA minor incontinence and ED still a work in progress

TIMOTHY HOTUJEC Silver member was worried that his pain might be metastasised disease after his RP (Radical Prostatectomy) ekght years ago, but all’s clear and physio work is helping with the degenerative disease

RICK DANCER still undecided and considering Calypso® or PBT (Proton Beam Therapy) at Loma Linda

P J another Silver member reports that six years after his RALP (Robotic Assisted Laparoscopic Surgery) he’s fitter than ever – maybe some ED

BILL PRITCHARD yet another Silver member (those reminders are working!) who had RP (Radical Prostatectomy) in 2004 – undetectable PSA

GORDON KERR Silver member who chose HDR – (High Dosage Radiation Therapy) in 2003 for his GS 9 diagnosis is on ADT for a PSA of 1.85

RUSSELL WINDLE twelve months away from his Gold status after RP (Radical Prostatectomy) and still undetectable PSA

GLEN DENTON with a PSA still below 1.0 very pleased that he cancelled his recommended RALP (Robotic Assisted Laparoscopic Surgery) and chose Active Surveillance

PHIL KATZ four months after IGRT (Image Guided Radiation Therapy) and he’s feeling stronger



All the best

Terry in Australia

RETURN TO HOME PAGE LINKS