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I am assuming that you have had your prostate out based on your later post.
I would first question whether you need radiation right away. What was your post surgery nadir(lowest) PSA? If your PSA in less than 0.02 then you might just want to wait and see if you get lucky and delay radiation treatment. If the nadir is more than .04 and/or is going up then get treatment before your PSA hits 0.2.
As far as the radiation machine; any old one will just about do ;-). Actually any beam shapping one will do since they don't precisely know where to radiate so it will be a box about 3 inches by 2 inches by 2 inches. No precision required. I went through this disccussion with my radiation oncologist too.
When you are on radiation you should also be getting hormone treatment and you might want to take a baby aspirin (a recent study claims it improves the chance of killing the cancer if you were high risk).
I am 2 weeks out of 5 through my radiation treatment and it has not caused any problems yet but I am told that it is the last week that is the toughest.
I realise that oftentimes insurance calling the shots may guide final decisions, but surely you can delay the start of your treatment until you can satisfy yourself about the issues that are concerning you?
It is not as if you have evidence of the disease raging out of control - I would expect that the delay, if you do this, would only be a matter of weeks and that assuredly is unlikely to make any difference to the final outcome.
It is far more important, in my book, to be satisfied that what you are gong to to is BEST for YOU and not rush into something that you have doubts about.
The Sloan Kettering nomogram predicts a 64% chance that you won't have your PSA go up for 6 years after treatment if they include hormone treatment with the radiation. It is 40% without hormone treatment. If your PSA does start going up you have another 2 to 20 years on hormone treatment and then 2 to 10 years on chemo/experimental treatments.
If you do start looking at statistics it is important to look at the "death from prostate cancer" and not disease progression or just death number(it will include heart attacks, stroke etc.). It is easy to think your chances are not good when in actual fact your chances of dying from prostate cancer are still pretty low. If they took your prostate out then they think they can keep you alive for a long time otherwise they just close you up without doing the operation and put you on hormone treatments.
Have just finished 7 weeks of Radiotherapy and everything seems ok except the frequent urination. Peeing once an hour sometimes more (at night). This is driving me nuts so any help would be much appreciated.
The Radiation Oncologist put me on Flomaxtra but it's not making things better.
Have or do you get ultra sounds at the Urologist? This is now a fairly inexpensive way to find out if you are retaining urine.
They lube you up just over the pubic area and rub the small hand held sensor until it beeps. The machine then prints out the volume of your bladder.
If you are having trouble emptying, your doctor may be able to prescribe medication that can help.
Between radiation, hormone, and late soft tissue damage, I know what a pain the sleep interruption is.
Good luck - p (Alaska, USA)
Haven't had an ultra sound yet but will ask the Oncologist about it when I see him.
Just a couple of questions if I may.
How long does this frequent urination last, it's been 4 weeks since I finished the radiation and it's driving me mad?
What sort of things can I do myself to make sure the bladder is completely empty?
Thanks for being honest, I cope better when I know what I'm dealing with.
Is there a medication they can put me on in the meantime?
Anyone else out there been through this and what are your experiences?
I'm afraid I can't be much help predicting "how long it will last". Seems like it depends on individual tolerance to radiation and the amount of surrounding tissue (including the bladder) affected.
With me it started subsiding about three months after treatment only to return 2 years later in the form of strictures and an irritated bladder. After having a "mild" TURP last August, it took 8 months for the pain to leave. As of today, I can sleep 3-5 hrs. at a stretch and have my incontinence (result of TURP) return to about 95%.
Meds prescribed for urine flow were Flomax and Rapaflo (not at the same time). I have discontinued these. Meds for bladder spasms were Enablex, Detrol (both discontinued), and Toviaz.
I also went through 8 weeks of Hyperbaric Oxygen Therapy but don't expect any insurance help with this treatment unless this becomes a chronic problem.
I'm due for a PSA shortly and I'll post those results but so far that has been the best news.
The one thing you should know is that with time things will get better especially if you do your Kegels and other activity that increases blood flow to the area.
Good luck - p (Alaska, USA)
p.s. Also watch what you eat or drink during this time as the Urinary system is very sensitive to certain things. Your doc should have a list of what those things are!