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I was diagnosed with two aggressive tumours. The MRI suggested that the prost was a candidate for complete removal. I'm fine with that. Anyway, I then had a bone scan, a CT, and chest X-ray, to see if there had been any spread. While waiting for the results, I got a call from a Dr who was part of Clinical Trials for PSMA PET scans. He said the hospital was offering me a place in the Clinical Trial and that if I agreed, I'd be given a PET scan.
Googled it and learned that it's supposed to be X times more accurate than a CT, and can detect stray cancer that has moved away from the prost and taken up residence elsewhere, even if those fragments are very very small.
Sounded good to me so I met with the Doc, and he outlined the deal. I was almost sold, but then I asked him what happens if they find a very very small bit somewhere. He says, well, we keep that information as part of our research. I said, But don't you give the results to the Specialist so that he can think about possible plans of treatment? He says, No.
So, I went cold on the idea of course. No point in having a medical procedure if it's not going to tell you anything. Especially if you also have to get a dose of radiation higher than usual.
Anybody had that experience with trials? What's the deal with them?
