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My surgery was in November 2009 (See story under Watchful Waiting)
After surgery pathology showed left seminal vesicle invasion and two positive margins Gleason 4+3. I saw a radiation oncologist two days ago and she recommended adjuvant radiotherapy asap. My latest PSA was undetectable (<0.01).
I was also offered a chance to participate in a clinical trial where 50% would have radiation and 50% would wait and see. There was no choice as to which group one would be in.
The RO also said that no one knows for sure whether the radiation would result in a longer life or not. However she did mention some of the side effects of radiation including, rectal bleeding, urinary problems, pain, erectal dysfunction etc.
Right now I am feeling really well, better than anytime in the last year or two. Continence is 99.99% after two months. Still no joy in the ED dept although surgeon said he spared both nerves (some bruising that takes months to heal).
With that information I have decided to wait and see. The good news is that if PSA does not rise no further treatment is needed. If it rises when I am much older, no probs. If it does rise I can still have EBRT as it will most likely be confined to the prostate bed area.
If 'normal' PSA is around 4, what is the danger level for us guys? Does anyone really know?
Still hoping for a 'magic bullet' to be found in the next 10 years. Meanwhile life is meant to be enjoyed so its time for wife and I to spend some time doing that. Best wishes for your treatment and it is true that we have to be our own experts on our condition.
Dear Les,
Thanks----a killer vaccine is being tested here in the States. A huge clinical trial wrapping up in June 2010,
my local guy says the stuff works---we will see. Try to stay well. WE
