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Hi Terry,
Thank you for your reply and the info.
I have now read your full biography which was very interesting and thought provoking reading especially as I have only been dignosed with PC in May 2009 and have been researching every day since then.
My PSA was 5.6 in March 2009 and 4.6 in June.
Gleason 3+4=7 and 9 from 12 cores showed cancer; total percentage 10%.
MRI grading T1C -organ confined.
Currently opting for AS with a further PSA & DRE end September. Am looking into HIFU with the Sonablate 500 @ UCLH London-this is my most favoured option.(Cyberknfe, I think has still to prove itself) whereas HIFU has 5 satisfactory disease controlled results. With your experience your opinion and views would be helpful and appreciated.
As far as HIFU is concerned, I believe that the therapy definitely has promise. There is very little published material (other than that provided by the manufacturers of the equipment) that gives a clear view of how effective the therapy is. What is abundantly clear is that for this therapy you need someone who really knows what they are doing and can demonstrate that. The damage that can be done by an inexperienced operator is significant.
I’m not sure how many experienced HIFU operators there are in Britain and if I were to consider this option, I’d be looking to go across the channel to an institution where they have been doing it for years and have an established track record that they would share with you. I assume you have read the HIFU stories on the Yana site?
