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I had a meeting with my local oncologist to discuss treatment after prostate removed Gleason 9 and two readings of 0.4{6weeks} 0.7 {2months}, he was very negative, as I have found most doctors in Norfolk to be.I start 20 sessions of radiotherapy this week. I would very much like to hear from other uk patients the names of any experts in this field.
My husband was diagnosed with gleason 9. He was told there was not a surgeon in the UK who would operate on him. Was you orignal diagnosis a gleason 9. We have been lead to believe that because my husband's first diagnosis psa 93.5 gleason 9 stage T3b was so high that apart from hormone treatment, anything else was a waste of time. This came from his urologist and oncologist. We had hoped for removal of the prostate so I am very interested in your case. I hope things go well for you. Good luck
Jennie
Jennie, I was first diagnosed as psa10.8 gleason 8 stage t2b.This changed when the surgeon said my prostate was'riddled with cancer'I read about all these expert oncologist all in USA and Isreal but we seem to have little choice in the uk-ours seem to deal with all cancers not specialising in pca. I had a job to get my surgeon to agree for me to see an oncologist and now if I hadn't it would have taken at least a month before my radiotherapy started whereas now it is days.Keep fighting for the best!
Steve R
Current thinking is that a Gleason 9 tumour has most likely escaped the gland and that surgical removal would, in those circumstances, be counter-productive.
The reason for this is that there is some, limited, evidence that removal of the gland in such circumstances can provide growth factors that would encourage the advance of systemic (cells that have lodged in other parts of the body but not manifested themselves) or metastasised disease (cells that have started growing in other parts of the body.
The general view is that for men with a diagnosis like your husband's ADT (Androgen Deprivation Therapy) is the best route which can in many cases manage the disease for considerable periods of time.
