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My husband was 50 in June of 2007 when first diagnosed. His PSA was 19.8 and gleason of 4+3, Type IV. He was told that his cancer was VERY aggressive and not curative. We were looking into HIFU but had to ensure that the cancer had not spread outside the prostate (11% chance it could have). Well, the lymph node removal and biopsies confirmed that it had spread to the nodes. MRI and Bone scans showed clear back then. He was treated with a three tier approach. Casodex/LUPRON, then tomotherapy for 25 sessions and lastly, HDR. He developed severe hip pain a month after the HDR and a week before his second LUPRON shot. X-Ray showed nothing.
Now he has developed pain in his back and right heel. So severe that he lives on morphine and supplements it with vicodin. His last PSA was .67
Just had a bone scan done last week. Something was there but of course the tech could not comment. We are awaiting the results.
As others have mentioned, low PSA may not tell the true story for those with "aggressive" PC.
Life at 52 is just a constant drug high for Fred. Hopefully, this scan will give us some answers and therefore, some combative ways to fight this awful awful disease.
Thanks,
Doreen
