Prostate Cancer Survivors






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Re: High PSA

Paul ... similar situation here.

PSA on routine blood testing 65. PSA bounced around between 45 and 65 for five years with no symptoms, including normal DRE.

Yes, five years ... I was in denial and afraid of having the biopsy performed. Yeah, silly but true.

PSA jumped to 115 in 2007. Family/friends persuaded me to have the biopsy. It was positive.

Started hormone therapy to reduce the prostate size and lower the testosterone.

Had every scan known to mankind over the next several months ... all were negative for metastasis.

10/07 had radiation seed implant followed by external beam radiation in 12/07 & 01/08.

PSA in 7/08 was 3.

Now, a year after the radiation treatments ... still on FLOMAX with some burning on urination but those symptoms have improved greatly and some, very little improvement in ED. Feel like I'm doing fine.

Good luck in whatever you decide.

Re: Re: High PSA


Thanks for that story, very inspiring.

The Stranger

Re: Re: High PSA

Hi Phred:
Thanks for your reply, it's realy a very similar situation, except I'm trying to deal with it right now, at an early (?) stage. I hope it will make some difference. Allow me to ask a few more questions about your biopsy. What was your Gleason Score ? How many positive samples ? Why haven't you considered surgery ? I'm deeply grateful to you and others who are helping with their experiences.

Re: High PSA

Hi Paul,

I too had a high PSA - 182, back in 2005, but MRIs found that bones and lymph nodes were clear.

Now, this is purely my own personal opinion, but I am glad that surgery wasn't an option in my case.

Like others here, I had hormone therapy and radiotherapy, and have come through it all unbelievably well.
I have had no cancer meds at all for 15 months now yet my PSA is stable at around the 1.0 level.

It's been a long journey and I did suffer the usual side effects of treatment, but they have now all disappeared.
The full history is on here on the Mentors pages at:

Whatever decision you make, may I wish you the very best of luck and full recovery.



Re: Re: High PSA

Hi George, thanks for your attention. I read your story, and noticed that you chose hormone therapy right from the beginning. Why was that ? Why have you rejected surgery ? Was it just based on your high PSA ? I'm very concerned on making such serious decision only based in an inaccurate blood test !!!

Re: High PSA

Thanx Stranger ... but I do realize that just because I feel like I'm doing fine right now, this ain't over and these fingers will remain crossed for a very, very long time.

Re: Re: High PSA


Absolutely and mine will be crossed for you as well.

The Stranger

Re: High PSA

I'm sure you have heard it said, but each prostate cancer has a unique set of circumstances. What worked for one person may not for another. There are nomograms online that can help determining if it has escaped the prostate. They told me mine hadn't, but all the nomograms said it had. It had. I had a low PSA, but a Gleason score of 9 (5+4). Not many options. I went with LRP. Now I'm on Hormonal therapy.

good luck,


Re: High PSA

Mark ... I absolutely agree and in no way meant to suggest that my choice of treatment was the one for Paul or anyone else. I was merely addressing his request for "similar experiences".

I still don't know if I made the right decision. Unfortunately I had already made the decision prior to joining this forum.

My Urologist and Oncologist were heavily pushing radiation treatment as the likely choice for me and I found no dissent from second and even third opinions so I went with it.

As many of us on here already know and folks like Paul are soon to discover, after the shock of hearing the "C" word we enter the very strange world of "decision making".

The options are seemingly endless and, yes, there are those that have agendas to promote in our decisions. They'll throw facts and figures at us that, quite frankly, we don't understand and promise this or that in side effects and treatment results which may or may not be reliable.

The bottom line is that we must trust someone we feel that has the knowledge to point us in the right direction and that's tuff to do in a life/death situation.

I trust the folks on here and wish I had found this place before making my decision.

Good luck to you Mark and feel free to join us in the "finger crossing" (grin).