Prostate Cancer Survivors

 

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Newly Diagnosed - Active Surveillance ?

Hi,

My name is David from Aberdeenshire (Scotland, UK) and I was diagnosed after biopsies 6 weeks ago (Gleason 6 / T1c). Bone scan clear, awaiting MRI. Have some significant related problems following massive acute retention admission in January (5 litres, everything failing) and bladder is now wrecked, so permanently catheterised. They thought it was BPH initially (2x normal size) and psa's from January were 8.7 - 9.5 - 20.8 - 12.8 (August). Need another psa before long, to see if long term trend is still rising.

Have been round various sites, and so far seen only scant evidence of people going for Active Surveillance - my preferred strategy just now. Is this sensible ? Would appreciate views of all kinds !

Cheers for now / David

Re: Newly Diagnosed - Active Surveillance ?

David,

If you have been through the site you'll find links to various aspects of Active Surveillance, including my second website ACTIVE SURVEILLANCE where you can find this article: ACTIVE SURVEILLANCE FOR FAVORABLE RISK PROSTATE CANCER The site is a bit of a mess, but it does give you some basics.

You can also read the stories of a number of men, including me, who chose this route by going here MENTOR EXPERIENCES - AS

As to whether you are a suitable candidiate, that will depend on a number of issues, but especially the aggresiveness of your disease as indicated by the Gleason Score. Active Surveillance may sound an easy choice, but it isn't and it is not one that a man should choose unless he is pretty certain of his diagnosis.

But good luck anyway - and come back with any questions you might have

All the best

Terry in Australia

Re: Newly Diagnosed - Active Surveillance ?

Hi Dave,
I was diagnosed in January with a gleason of 6 and a PSA of 6.9. I am only 47 and decided that the only choise for me was the robotic procedure which I had in July after eight weeks if am feeling like my self again except of the sex part but I am giving myself a year. My brother went to his doctor when he was 40 and had a PSA of 4 he did not go back for two years and at 42 had a gleason of 8 and needed 40 treatment of radiation therapy. If you are in your 40's 50's or 60's I woul recommend having the cancer taken out it is not going to go away.

Best of Luck
Pat
Phila, Pa

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