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Better to post anything here, Joyce. I usually monitor the Forum pretty closely, but I travel around a fair bit - never enough of course - and if I'm not around, there will be someone else who will help oyu, I'm sure.
Hi, Joyce. I am really interested to know where you live. After my husbands surgery in spring 07 his PSA shot up again and the radiatiologist rejected him for radiation treatment even though his urologist referred him there. He was instead put on Lupron. although the PSA was down to undetectable levels after 2 treatments the results for our relationship were disastrous. He is off the Lupron now but has begun to complain of twinges of back pain which is an ominous sign. What was your husband's presurgical PSA and Gleason. I would really like to have another woman to talk to who is going through this also. I'm sure that all cancers affect spouse as well as the individual but this one seems to be particularly troublesome because of personality changes that come with some of the treatments.
Whilst you are very welcome here, you may be interested to know there is a specisl forum that you should go along to.It is A Prostate Cancer Forum for Ladies Only and from what I have been told you'll find a warm and sympathetic audience there who will be able to help you with your problems. Believe me you are not Robinson Crusoe here - there are many women whose husband's have reacted badly to hormone therapy.
As to your husband's back pain, that could indeed be a bad sign as you say, but more often than not, because we are so focussed on the possibility of spread, we start wondering if any twinges are PCa related instead of recognising that there are other, more common causes. It seems unlikely, from the brief information you have given, that a condition that responded so rapidly to ADT would have metastaised without being recognised in a bone scan.
I had ADT for 5 months before my HIFU treatment and the 3 month Zoladex implant finished a month after the HIFU treatment. ADT can cause some muscle and joint pain so the back pain may only be due to the lack of testosterone in his body. It is now 4 months past the end point of the last Zoladex implant and I still do not have any testosterone in my body. I find that sitting in a car for an hour or so will result in my having some mild difficulty getting out and walking for the first few minutes. There is a loss of muscle strength and mass due to ADT. Until the testosterone starts to be produced again he will probably experience some twinges in his back. In my case the twinges and instability is in my legs.
