This forum is for the discussion of anything to do with Prostate Cancer. There are only four rules:
No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
No harvesting e-mail addresses for Spam;
No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making
Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.
Since this is an International Forum, please specify your location in your post.
Re: Re: My husband's story can anyone give their opinion
Don't rule out proton therapy, which my husband successfully completed at Loma Linda University Medical Center last Oct., more than two years after his radical prostatectomy with "negative margins." A body scan showed microscopic cells in the prostate bed and he was a candidate for proton therapy at Loma Linda. There are at least 6 other places in the states who offer this wonderful treatment.
NO SIDE EFFECTS. The protons are precisely targeted to the cancer cells and the healthy tissue is spared.
Please e-mail me if you wish to know more about this, or go to Loma Linda University Website or its support groups website (just Google "Brotherhood of the Balloon."
Brenda
If you want information on Proton Beam, click the link - you might find it worthwhile checking the all the links on this section of the Yana site, including the stories of men who have had the treatment.
Since this thread has popped up again I thought I'd share with you all our lastest situation. At 6 months post op my husband's PSA came back at .3. Urologist suggested to wait another 3 months and if it went up to see a radiation oncologist. This bought us some time with his incontinence. He is down to one pad a day so that is better. Well it doubled to .7 in those 3 months. Yuck! We met this week with the Rad Onc and he feels we still have a window for a cure. We did have a bone scan prior to the visit but the hospital messed up the report so it was not available at our 1st visit. Very frustrating. We did decide to have further testing and he will have another CT scan and also a proctoscint. Also will proceed with radiation plans while these tests are being done. He feels a sense of urgency to begin the process because of the PSADT. I'm sure if the scans come back for mets we'll stop the radiation plans. His cancer does seem to be aggressive doesn't it? I have read alot lately on how important that doubling time is to ones prognosis. We're pretty scared as you can imagine.
It is not what we had hoped for but need to focus on something positive somehow. Summer is around the corner. That's good news right!
Take care everyone.
Martha
